Hi everyone! I've only just found this site but I'm so glad I have! Dad, aged 77, has had PSP for approximately 4 or 5 years. I care for dad in his own home along with my 2 brothers. Mum was always the stronger one of my parents but she unfortunately passed away last year after being diagnosed with bowel cancer. Dad has deteriorated greatly over the last 12months since mum died. We have carers who come in 4 times a day. My brother has moved in with him to look after him and I try to spend every afternoon and evening with him. I've given up my job to allow me to do this. My other brother looks after dad every sunday. We are all finding things so hard to deal with. Mum and dad never spoke to each other about what each one wanted re their funeral etc, so we are at a loss as to how to raise the subject with dad. He is now at the stage where he is unable to walk independently, needs assistance when going to the toilet, he chokes regularly when eating/drinking and his voice is the quietest of whispers. He is still mentally aware of everything most of the time although I don't think he realises what stresses he is creating for us. Please don't misunderstand me - we all love dad greatly, but feel we need to get this across to him. He has no quality of life left (he was always so active previously) and we feel there is no humanity involved in, say, treating him if he gets chest infections etc. He was in hospital last March with pneumonia.
How can we talk to dad about how his health is affecting us - I have taken antidepressants for several years and this is having a detrimental effect on my health - without dad feeling he is unwanted?