I look at times pretty sickly an invetably the question is asked wants wrong. welll i may as well tell them i suffer from a deadly space virus picked up from a visiting martian.
its a lot easier than saying psp. ...........i tried the easy way out and told people that i have parkinsons.....a classic response was "well you dont have it bad untl you start shaking"
Nevr mind the falls the wheel chair, slurred speech poor vision difficulty in swallowing,
Now somewhere in this world is somebody that can give me some inspiration on how to get a support group going on fresh air i am a pensioner.
Even where I get treated whilst the doctor understands, he puts down pArkinsons just in case some nurse etc does not know what psp is.
If you want to help me please contact me ideas, thoughts, xperience will help me befoe i kick the buckeg