loss of sensation?

[Buckeye7]

last night I questioned whether MSA, PSP or CBGD patients experienced pain when they had injuries from falls. My mother in law had CBGD and had little or no pain with serious injuries. another thing I realized while I was caring for her she didn't have sensation when she would have a BM. I would sometimes ask so I would know whether she needed a laxative and she said she couldn't tell me until she would look after she was finished. She could not tell from lack of sensation in that area. Has anyone experienced this or can you think of any other instances where there is a loss or diminished sensation in any area? Jan / Buckeye7

[NannaB]

My husband feels little or no pain when he falls. I put it down to him falling like a drunk man, relaxed without trying to stop himself. He can have horrific bruises but says nothing hurts. He hasn't lost the feeling of pain totally though. He has a sensitive big toe which hurts in certain shoes, he jumped when the shower suddenly went too hot and he will wince if I forget to tell him to put his elbows in when going through doors in his wheelchair. He knows when he wants to go to the toilet and when he has finished.

Nanna B

[Buckeye7 in reply to NannaB]

NannaB. Thank you for your info. Peg never lost feeling everywhere either. I would sure like to figure more of this out. Giving researchers as much data as possible may just spark them to search in a direction that could one day find some help. Buckeye 7

[zjillian in reply to Buckeye7]

I really think it is not at all simple, because my husband(PSP) does feel pain and sometimes complains sometimes also has what looks like no sensations and comes in bloody. It might be that the ability to understand the feeling of pain and focus attention to it , know where it came from, what it means, and remember it all long enough to communicate it to someone, requires a lot of healthy, interconnected, complicated, cognitive skills.

They used to believe that newborn babies felt no pain and that they could do surgeries on infants without any anesthesia. Same kind of situation.

[Buckeye7 in reply to zjillian]

That is really interesting and I can understand what you are saying. Sometimes when Peg would fall (which was very often) she would be in such a panic, that she would have noidea how she fell, how or where she landed and until all the bruises showed up we wouldn't be sure what she hit. I think it was like infomation overload and and kind of short circuit. I appreciate hearing your view jillian.....take care....buckeye7

[zjillian in reply to Buckeye7]

Good luck to you as we all continue this difficult time.

Jill

[jillannf6]

i do no tfeel pain like i use d to but i fell on sunday on my left should er and again yeserday evenign and it really hurt em so much tha ti hav been takin co -codamol 4 the pain and my right knee is v painful as i tend to always fall on to my right side )(not my left) _

lol Jill

:_)

[Heady in reply to jillannf6]

Plenty of ice Jill and lots of red wine!

Lots of love

Heady

[puyella]

hi jill heady hows it going both of you ok I hope when I have fallen over which is quite often and I cut my head open I never felt the pain either not until they come to stitch it for me when they gave me the bee stings to deaden the pain of stitches which i felt was worse than being stitched up but they say NO SENCE NO FEELING OR SOMETHING SEE YER PETER JONES QUEENSLAND AUSTRALIA PSP \ SUFFERER TAKE CARE ALL OF YOU OUT THERE ITS A BEAUTIFUL DAY THE SUN IS SHINING BIRDS ARE SINGING ITS GREAT TO BE ALIVE ISNT IT HANG IN THERE ALL YOU PSP PEOPLE

[puyella]

hi jill heady hows it going both of you ok I hope when I have fallen over which is quite often and I cut my head open I never felt the pain either not until they come to stitch it for me when they gave me the bee stings to deaden the pain of stitches which i felt was worse than being stitched up but they say NO SENCE NO FEELING OR SOMETHING SEE YER PETER JONES QUEENSLAND AUSTRALIA PSP \ SUFFERER TAKE CARE ALL OF YOU OUT THERE ITS A BEAUTIFUL DAY THE SUN IS SHINING BIRDS ARE SINGING ITS GREAT TO BE ALIVE ISNT IT HANG IN THERE ALL YOU PSP PEOPLE

[Gayly]

My mum lost bladder and bowel control but as far as I know she could still feel pain, I can remember her making an ouch noise when my auntie (who didn`t know any better) tried to open her hand where the fingers were in spasm, she also had pain killers for her broken hips.

All the best to you and your mother in law.

[jimandsharynp]

I think PSP slows down many muscles in the body and not just the tongue/throat. Since these muscles don't get the "messages" from the brain they don't work well causing constipation. Perhaps because the muscles aren't working well she can't tell. IMHO Jimbo

[Buckeye7 in reply to jimandsharynp]

I agree, but I also question how the nerves are affected.

[mombcd1policedad48]

what do you use to control saliva I have a really bad problem with it