Should I take mam?

Hi everyone just a quick question,. Today at 2 o'clock the hospital near us (James Cook) has a big meeting on for people with psp, there is going to be a neurologist and Parkinson's nurses there. I am going with my brother, but shall I take mam who has the psp. I don't know what to do for the best! Some friends and family think it might be a bit too much information for her and others think it might be good for her, I don't want to make the wrong choice!! What would yous do???? Xxxx

10 Replies

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  • i would go and take your mam with you

    lol JIll

    s

    :-)

  • Thanks Jill but it's not a friends and family meeting it's more about giving you information about the condition and with her just recently being diagnosed is it too much information to soon xxx

  • Thanks Jill but it's not a friends and family meeting it's more about giving you information about the condition and with her just recently being diagnosed is it too much information to soon xxx

  • If girls can have you then they need to know !

  • all I can say is as soon as I found out that I had psp I went straight onto the net and found out everything - so really it is down to you knowing your mum I guess ..

    love Sharon xxx

  • hi i agree with sharon on this one - is it too late now = has the meeting happened??

    best of luck with you and your mam

    i know the hospital quite well as my dad was in there for a month b4 he died and it wa shis funeral on Wednesday just gone = he was 92 and had a v short illness which he could not fight off so with true Yorkshire grit he hung on until ,my partner ,brother and i had made a long day trip to see him b4 he died

    and we gave him a good send off on wednesday

    so it will be strange com gin back to N Yorkshire and dad not begin there but my lovely 3 cousins are and That is more reason to come back to the area and to meet up with his friends and neighbours

    lol `jill`AND A :-)

    psp [person in the `UK]

  • Hi Maxine, Definitely take her, She will want to be aware of the future just as much as you, It's much easier to handle with no secrets to worry about., Peter, also in Yorkshire.

  • Hi Maxine, My husband has PSP and I go alone to meetings. My husband is in denial so I need to talk to people about my experience with this terrible disease. I find it is mostly families and carers and very few people with PSP at the meetings. Good Luck

  • If my wife were mobile I'd have taken her. If not mobile I might not have taken her. The PSP brain can absorb information so it might be good to take her but not mandatory. Jimbo

  • Too late now, only just picked up this post. However, if you did take your mam then it won't have done any harm for the professionals to see the effects?

    Depends how your mam is reacting to having the condition.

    Mo

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