Hello I have never posted before but have been reading posts for the last month or so. After 18 months of neurologist visits my father has been finally diagnosed with PSP. Once we read about it sadly everything fell into place. Having overcome my initial shock I am feeling overwhelmed regarding where to start in helping my parents get the best care without frightening them too much. We went privately for the final diagnosis but I'm already confused as to how we get "in the system" to ensure my dad gets access to all the right medical specialists he will need. PSP care pathway document has been v helpful but still feels overwhelming. I have never felt so out of control before and helpless. Any responses would be gratefully received as I'm feeling completely lost at sea if I'm honest.
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