Article by our neurologist at the university of Florida about PSP

[jimandsharynp]

Just thought I'd share this article by our neurologist (we really like him). It is about PSP and informative. Here's the link.

mdc.mbi.ufl.edu/for-patient...

Jimbo

[Hidden]

Hi Jimbo

This article is very good and covers the salient points for those requiring a good overview of PSP.

Thanks for sharing this reference.

All the best.

[deew]

Thanks Jimbo

[Dordor]

Thanks ,interesting article, I will show it to my Doctor..

Dordor

[shasha]

thanks jim it was a most interesting article - plus i went onto a couple of the links

[Hidden]

Thank you very much. Very good article. I find it in particular interesting what he says about occupational therapy, massage, and blepharitis. The issue of pain related to this topic has come up many times on this forum as well as dry eyes.

I am amazed how little GP's seem to know about those issues, shocking. The only thing they do, if anything, is to prescribe pain killers. It makes my blood boil. It is about time that GP's and even some neurologist get up to speed and do something about the causes of aforementioned problems other than simply trying to treat the symptoms.

[cdhollingsworth]

Very good article. Thanks for sharing.

[terrirt]

Thank you. That was a good article.

[laroux]

Thanks Jimbo,

Good to know it's being researched in our part of the world! Nice article.

Joan,

Alberta, Canada

[whisperer]

I have saved this article for the next "person" who asks me what I am suffering from. Last time I fell I was on crutches in a restaurant. I do not drink but my wife on an enquiry by the manager said it must be the "whisky" she already explained I had PSP He prompttly whisked out an AA pamflet and gave it to her. Laughter is the best medicine....sometimes

Whisperer

Cape Town

South Africa

[jimandsharynp in reply to whisperer]

That, my friend, is very funny. I needed that today.

Jimbo

[CGC1 in reply to whisperer]

Sorry maybe I didnt understand.

Were you actually drinking whiskey?

And you have PSP?

I thought alcohol and PSP were a terrible combination!!!

[whisperer in reply to CGC1]

On the contrary i do not drink. my wife went to great effort to explain to the manager that i suffer from psp and to make the table arrangement accordingly ie accessibility for myself. none of had a drop to drink of alcohol but getting up from a chair (which was not at all accessible) with crutches I fell. The manager rushed over and after all the explaining my wife did she was so frustrated with the manager that she blamed on a non existent whisky! THe manager immediatly jumped to the conclusion that i had a drinking problem although there was no alcohol on the table and gave an AA pamflt to my wife. Hence next time I get treated to a meal my wife has vowed to take the article Jimbo suggested with and have an education session. She printed a copy and gave it to the manager who was most apologetic but it shows people jump to conclusions.and need to be educated!!!

Have a great day, will have my nightcap just now a glass of milk without the 'whisy"!

[CGC1 in reply to whisperer]

Ok. Thanx. I understand.

I was very confused.

My dad (66) has been diagnosed w/ PSP and if he drinks even 1 little glass he'll get completely wasted; cant walk, cant talk, cant think, cant see. Even w/o alcohol he has difficulty doing those things.

[easterncedar]

Thanks so much for the article. Lots of good information, easy to understand. It is going to help me a great deal as I try to explain to my sweetheart himself and to his family and friends what is happening to him. He so much wants to believe that there's a treatment out there that his (very good) neurologist hasn't tried. We've tried and stopped sinemet and amantadine, still using CoQ10 and selegiline. I think the CoQ10 has helped to slow the progression. On we go! Thanks again.

[jimandsharynp in reply to easterncedar]

Thanks. You never know what might work. I remember my dad had shingles and tried crazy things. He rubbed peanut butter on it then later trid WD40. Lol

Jimbo

[easterncedar in reply to jimandsharynp]

I think I'm going to try the turmeric next - maybe then WD40!

[jimandsharynp in reply to easterncedar]

Ha ha you made my day. I needed a laugh.

[jillannf6 in reply to easterncedar]

Hi turmeric is supposed,to, help lo,Jill

[easterncedar in reply to jillannf6]

I've got empty capsules and plan to fill them with turmeric for him, and in the meantime I add it to everything I can when cooking. I expect us to develop a nice sunny daffodil glow at least!

[SWISS_MISS]

Good article