My darling dad is finally free of PSP. Another angel is watching down over me.

[groovychick]

Yesterday morning at 4.50am dad took his last breaths surrounded by his loving family. I'm absolutely heartbroken. I can't say much right now but I know he's in a better place.

[mrsfarringdon]

Hi

As i posted earlier I'm in the same situation I'm at dads bedside in hospital my thoughts and prays go out to you and all your family god bless. Another angel will soon be joining him x

[Hidden in reply to mrsfarringdon]

very best wishes to you all , sending hugs and xxx

[coleen]

I'm so sorry for your loss. I can fully understand your heartache. I lost my Dad in on 19th April to PSP, and it hurts even today. My thoughts and prayers with you and your family.

[Sharon637]

Love and prayers to all who have lost a love one to this awful disease. Groovychick, I hope you and you family find the strength to cope with the loss and take comfort that he is free now. MrsFarringdon I am sorry to hear of your situation and if the time is close I pray for it to be peaceful. Thoughts are with you all x

[wifemo]

Comfort yourself with the thought that you and your family did all you could and your Dad will have known that you were there with and for him.

Look after yourselves.

Mo

[deew]

Groovychick,and Mrs Farringdon I'm so sorry to read your new's and my hope's are that in time you and your family's hearts will heal.As you said groovychick you know he's in a better place but it does not make it any less painful.

Dee in BC

[SharonAB]

Dear Groovychick,

I'd like to impart to you the words that our 10 year old daughter spoke of at the weekend to a one of her 'adopted aunties' who has an unwell parent - "Its OK - when you look up - he will be the biggest, brightest star that you can see - for he is the brightest one in your heart just like my daddy is to me"

Regards,

Alana - Western Australia

[JoJo-K]

So sorry to hear your news. My lovely Mum lost her battle with PSP 6th September. I miss her terribly but take comfort in knowing she is no longer suffering, still numb really. Sending you a big hug and know I will be thinking of you and your family. Take care sweetheart xxx

[ultramodern]

I'm chocked up to read these two distressing messages...one Dad who's already a bright new star and the other awaiting to be one. Rest assured both know you couldn't have done any more than you have done for them...If either families have made arrangements to gift a PSP brain then they will know that they will be helping researchers combat this heartwrenching disease.

My departed bride got me to make arrangements to donate hers as soon as she was diagnosed. And I expect she's watching from up there just hoping that sooner rather than later we'll know where PSP/CBD comes from, how to diagnose it quicker ....and discover a treatment for it .

My warmest thoughts are with you both.

Courage.... as one reply above puts it they will be free of suffering.

best,brian

[nansh6]

I am very sorry to hear this news....but yes he is a free spirit now with no more suffering x

[Hidden]

So sorry to hear us very sad news my thoughts and prayers are with you

Take care of yoursef x

[Peter3]

Dear Groovychick and MrsFarrington,

I'm so sorry to hear your news, Words are always so inadequate at times like this, but just to let you both know you are in my thoughts and prayers.

Take time for yourselves, often a very difficult thing to do.

With love

Peter3.

[dbmy3]

I'm so sorry for your loss. I can't even imagine what your going thru right now. Hugs & prayers for you & your family. I too will very soon be in this sad spot with my father. Hopefully, we'll all find some comfort in knowing that we've done everything we could to help them move on peacefully.

Take care

[Hidden]

Groovychick

Words seem so inadequate, but my heartfelt condolences on the loss of your loved one.

[Brighteyesxxx]

I am so sorry that no words however beautiful will give you what you really want. However you can be sure that you are all in my thoughts and prayers.

Moment by moment I see my mum still beautiful but for what her health condition is.

However what hurts the most is the qualified people that all to often do NOT LISTEN to the family members that know a parent so well.

There is a lot I would or should be able to write up on this page but FEAR stops me.

My dad went asleep in my arms 18 years ago at Christmas and it should not have happened .

While on this journey of psp ,all this and certain people and lack of HELP has now wrecked my own health.

You can live with PSP as my mum has for a long time if you accept the person is still the same person with abilities disappearing .

Some times I say to my mum that if dad comes to take you for a walk, Don't be afraid.

I think I say that because my dad would truly take better care of his beautiful wife/mum.

So that little girl is thinking just the same as I do . If it were not for the magic of your belief then I guess I would give up but I too look up to the stars for ALL the love people that are Just out of sight but watching over us day and night. Love Valerie xxx

[PAnne]

Groovychick, Mrs Farringdon, JoJo, Brighteyes and all who have lost their dear one or on the point of losing them--know that we ache for you and hope you are able to live full happy lives one day.

[littlesupermum]

dear groovychick and mrsfarringdon thinking of you and sendin love and hugs from Ireland. x

[jimandsharynp]

Dear daughters: truly your dads are in a better place and the rigors of PSP can no longer touch or harm them. You did your part in easing his PSP journey. Take peace in that. I ask that once you feel comfortable telling of your dads journey in depth it may help us all cope who are still dealing with PSP. Bless you and your families.

Jimbo

[jillannf6]

H all

I reallydi feel 4 u all

My partner finds it imposs to put up w me

Sadly he blames,em for the PSP which is not my fsult

Lol Jilll

[Hidden in reply to jillannf6]

I'm sure he doesn't blame you, he is probably just angry that it has happened to you. xx

[Hidden]

Dear Groovychick, so sorry for your loss, I know what you are going through. Best wishes and stay in touch xxx

[Kathy]

So sorry for your loss xxxx

[Janedaniel]

Janedaniel.

So sorry for your loss. I too have just lost my lovely dad to CBD. It is heartbreaking. He passed away peacefully with all of us beside him on 4th October. We have watched our loving, kind and gentle dad/husband live with this illness for 12 years. We sadly had to place dad into residential/nursing care 4 years ago. It was the hardest decision we have ever had to make. It is a very difficult time but I draw comfort that he is no longer suffering and I know that as a family we were always with him on a daily basis and looked after him and that he left this world a happy man. xxx

[groovychick]

Dear all,

Thank you so so much for your lovely messages and words of encouragement.

In the 6 years dad had PSP I truly don't know what I would have done without the advice and support from members of this site. It has been invaluable.

Just over 2 weeks since losing dad it still does not feel real feels like a dream. I keep thinking he's gone on holiday or gone away to get better I say this to my self sometimes to ease the pain but man it hurts so bad I feel physically sick sometimes thinking about him in his last hours but I'm trying to be strong for my brother and mum and I knw in turn they are both trying for each other and me too. None of us would have wanted him to continue and suffer with psp and not be able to eat etc but still hurts. Some days I feel stronger then others and mornings are the worst when I wake up I feel it. But, we have to carry on just like dad wudve wanted us too and make him proud.

I was his main carer and used to do everything for him, and now there's just this big empty gap all the time.

I will be visiting this forum on days when I feel strong enough, and offer any help and advice I can in our fight against PSP.

Thank you so much xxxxx

[mrsfarringdon]

Hi I received your message today but unfortunately I've sent 2 replys but they just coming back to me as errors, thank you your so thoughtful, I'm not coping well at the moment every days a real struggle not a day goes by without a tear or two ,my mom passed 21 year ago but can't ever remember feeling as low as this. People say it might be because i lived with him for his last year to take care of him and we were so close, they say that times a healer but who knows ,it's good to know that someone knows just what I'm going through on a day to day basis ,take care of yourself xx

[groovychick]

You just said exactly what's happening to me. Everyday I cry. The pain hurts so bad and my heart feels so heavy. It's like I don't care about what's happening around me anymore. My courage, my strength, my rock, my world has gone. Trying to be strong for mum and bro but it's so hard. Life is a struggle on a daly basis I know exactly what you mean. Me and dad were the best team in the house. I fed him, dressed him, washed him, took him out, made him laugh, made him smile-we used to have our own silly jokes! They were the best times ever. We were so close it's like someone's taken away my right arm. I'm so sorry that you are going through this also, wouldn't wish it on anyone. Message me anytime if you need a chat or anything xxxx