My father is 67 years old and was diagnosed with PSP 2 1/2 years ago but has had the illness for sometime prior to this but it took them a while to diagnose. He is not on any medication for the illness as we tried a few and they did not seems to be of any help at all and the side effects are pretty awful on most so you begin to wonder really weather they are actually doing more harm than good. I myself am into more natural ways of medication with any illness. I have looked in to this for PSP and other than a high dose of q10 tablets there is not much else recommended. Recently I have started to give my father Turmeric tablets, you can buy the powder and just have that but the tablets are an easier way to take. He has been taking them for just over 2 months and I can not believe the improvement. He is still falling over as it seems there is very little that can be done to help with this but his speech and overall way of thinking and interacting has been so much better since taking turmeric. I have conversations with him like i used to he seems to be more on the ball and remember things better, he still has off days with his speech and slurring but has genreally been much better. I would definately say to anyone with psp that it is worth trying as it can not do any harm. I was also wondering if anyone else had tried and had any positive effects?
Tumeric tablets help my father with psp - PSP Association
Tumeric tablets help my father with psp
hi strelley what do you think of tumeric tablets any good or worth a try or just forget it
i value your opinion hows the mrs doing ok i hope and yourself of course peter jones qld australia still breathing and still looking from the top down thanks mate psp sufferer
Hi turmeric is also good4 inflammation of arthritis
Hi Jillann, l don't know how l found this tonight... accidentally I guess. But l have recently started taking Tumeric capsules & even found a recipe for Tumeric Tea... the recipe calls it Gold Tea...
l heard it's good for Arthritis too.
Sending Hugs... Granni B
Hello Peter
I have no problem with trying such things like tumeric (curcumin) since it is known to have neuroprotective properties. In fact, it's been investigated in the last few years for helping with Parkinson's, Alzheimer's, MS, and Huntingdon's disease. It's known to have antioxidant, anti-inflamatory and even anti-cancer properties.
Without explaining too much about it's possible usefulness in such diseases like PSP, it has been claimed to affect those little power house structures in the nerve cells (called mitochondria that can have problems in neurological diseases). It is also been shown to stop certain proteins from "going bad" (toxic tau) and helping bad ones from forming, or making sure they are removed from the neurons.
However, most of this work has been under controlled conditions, and usually in lab or animal models.
Tumeric looks promising from the above description, but, as far as I know, there's not enough clinical data in humans to verify it's usefulness in the areas described. There's a lot more work to be done on it's absorption and availability in the body.
I would think that there might be some limited and short time benefits (like CoQ10) but I would be pleasantly surprised if the benefits were significant over the whole course of such neurological diseases like PSP. As noted by dnl46, such compounds (again like CoQ10) tend to have mild effects on the frontal lobe problems and hence improve memory and cognitive functions.
Don't know if this helps or just muddies the water!
Cheers
hi strelley i thoiught i would get in quicki you seem to be in demand lately and why not with the knowledge that you have'' your bloods worth bottling'' as they say mate i thank you for your views on tumeric tablets i must say i liked the first part of your em better
than the second part probably because it was not what i wanted to hear ah well we cant have everything can we \\ but it does sound very promising once we get the mudied waters out of the way we might start to get somewhere\\\ thanks for prompt reply mate
regards to your wife she is in very safe hands see yer peter jones Q.L.D. Australia psp sufferer
How much turmeric do you give him, and when and how often?
Same question. What dose rate, how frequently per day?
Where do you get them from?
is tuneric a prescription drug if it is I will ask my doctor to write a prescription either way I will try it
I was diagnosed with psp 3 years ago
Barbara daughtry
mombcd1@yahoo.com
Hi Barbara,
Tumeric is not a drug, it is a herb/spice(?) that is known to have some medicinal qualities in much the same way as garlic does. As Jill said it is good for inflammation in arthritis and I have heard of it being used to good effect by someone with hyper-mobile joints. This is the first time I have heard of it being good for neuro-protection so I am grateful to Sterelly for that piece of information. I believe it is best to get the purest form possible and that you can get it from health food shops. It might be worth googling it to find out where you could get it from if you want to give it a try.
All the best
h
I cannot thank you enough for giving me help and hope that is all I have now I used to sing I used to have a really nice handwriting and I used to draw mow I cant do any of those things
Barbara daughtry
mombcd1@yahoo.com
hi, barbara daughtry hows it going ok i hope when i read you used to sing i was intrigued i used to sing and do comedy magic on stage and my handwritiing is gone to but dont let it worry you just say like i do BEEN THERE DONE THAT i miss it very much of course but thats t yesterdays news mate just dont let it get you down stay positive as you can and you will be ok believe me good luck mate peter jones queemsland australia psp sufferer
Hi all
Please read up before taking it (Turmeric).It may interfere with other medicine.
livestrong.com/article/1129...
Here is another site to check out as well.
parkinsonsand5htp.blogspot....
Hi deew - please see my quick reply to Jay60.
I've been reading about the different types of supplements and vitamins people are trying for PSP, some say they have had good results. Mum had appointment with the neurologist yesterday and we took along a list of things we were thinking of trying. We thought what's the harm in trying them even if it just gives mum a bit of hope for a while, she's been so fed up lately. He said Co Enz Q10 has been found useful in patients with early Parkinson's but he didn't think it would prove useful for mum at the stage she is at with PSP/CBD. He didn't read my list, tumeric was on there, he just said he wouldn't recommend buying and using these type of things bought from sites like amazon as they can prove dangerous and he certainly wouldn't give them to his mother. He said to get information from the PSP site as things there have been checked and can be trusted and don't use anything before speaking to a neurologist. Just a word of warning. I can understand you trying it though we are all so desperate for any kind of treatment. Hope thing keep going well and the tumeric continues to work for your Dad.
Hi Jay60
I have mentioned many times on this forum that anyone with PSP and other neurological diseases should check with their neurologist about any medication or supplements being taken ( or thinking of taking).
"deew" has given a couple of good references to side effects of turmeric (active ingredient is curcumin). Well worth reading.
I have a list of over 120 medications from "Parkinson's Australia" that should be used with caution in Parkinson's (and the same applies for PSP etc).
Cheers
Interesting coincidence. Earlier today I read a passage in a book entitled Behind the Beautiful Forevers about life in a Mumbai slum. It is recounted there that when a child living in an incredibly poor shack is injured, the remedy for stopping the bleeding is a paste made of turmeric powder and blood from the wound. It is stated that turmeric is "good for wounds and brides before the wedding." After reading this, I googled this spice and found that the turmeric root is commonly used in the production of medicines.
On tumeric. I've got a packet of sticking plasters in my medicine drawer that are filled with tumeric...that I bought in India. They work wonders to stop bleeding. But as far as helping someone with PSP I'm amazed.
And may I add carry on the treatment.
I'm sorry to disagree with any neurologist who says don't try it....it MIGHT be dangerous. This coming from learned medical professionals who take YEARS to diagnose someone with PSP. (dnl_46 writes).
What can they prescribe? NOTHING sweet Nothing. Because there just isn't anything, dangerous or not,
available as yet.
And since when has PSP been taken off the list of life threatening diseases?
If your loved one is going downhill daily with an average, life expectancy after diagnosis, of a couple of years what difference does it make to try to treat that person with tumeric. Or anythig else that looks like it's helping.
I'll even add ,"what quality of life "is the patient in for during those last couple of years?
To say it bluntly no-one has yet walked away from PSP/CBD ,it does'nt go away, it's terminal .Sadly.
We all need to hope.
Just carry on with the tumeric and keep us all informed. You may have found the holy grail.
best,b
Interesting topic ! My father was diagnosed with PSP 4 years ago and the first 2 years he took a high dosis (2 gr./day) of Q10 caps. This did not help to stop the progress of the disease. However since september last year he takes the liquid form of Q10 and that helps a lot ! However the neurologist did not believe in liquid Q10, he could only confirm during our last visit that the 'progression of PSP was slowing down and normally progresses much faster'. If someone is interested, I can inform you the website where I buy the product from.
HELLO PAUL - PLEASE CAN YOU LET ME KNOW WHICH WEBSITE YOU USE TO GET YOUR Q10 LIQUID ?
I am very interested in knowing how much turmeric and how much liquid Q10 you give your relatives! I have bought both of them for my Stefan, but I dont know how much to give, in order to get a result! Please answer!
hi, I have PSP and take every day 6 coq10 tablets, 6 tumeric with black pepper and 6 vitamin b1. I am in the early stage of diagnosis and have read up widely on treatments for PSP, and until a drug is approved I am hoping to avoid the grim reaper. I also walk half and hour a day and do keep fit a couple of times a week. Dave 1928huppmobile@gmail.com
Hello dnl 46!
thanks for your information! it such a great thing that people are sharing their experiences here 
My dad suffers from PSP as long as yours and he is 62 years old. Both of them are tooooo young to be that sick
We have tried CoQ10 in liquid , which was very expensive..... He was using it for around 6 months and i have to say it did not get worse. We haven't seen much of improvement but at least he was stable, which is good in this horrible disease. Can you please tell me what kind of/which turmeric tablets/powder exactly have you been using and how?
Have you spoken to your doctor about it?
Many thanks for sharing it.
All the best
Ania
Hello Ania,
You should give at least 30 drops/day (3 x 10 drops). The recommended dosis as mentioned on the package is the theoretical dosis. U personally do not believe in the curcumin as Q10 liquid has been much more effective in double blind studies (University of Neurology Marburg / Germany).
suplea.eu/en/winkel/sup-2/v...
Best regards
Vincent
HELLO - I WAS JUST WONGERING HOW MUCH YOUR DAD TAKES AND WHEN ?
Hi , I have PSP and take 6 coq10 ,6 cumin with black pepper and 6 vitamin b1. I have not consulted doctor, but hey can they really do any harm when the journey is so bad. I intend to live to 150 yrs and am hoping for a cure from the medical profession eventually but this is slowing it down in the mean time. good luck and do what ever feels good- don't get too depressed. Dave 1928huppmobile@gmail.com
hello how much does your dad take each day in mlgs
That's fantastic we are going to give them a go, thanks for letting us know x
THANKS I WILL TRY THEM]LOL jILL
I am considering giving my wife Turmeric tablets.
Is there a dose you could suggest.?
Thanks
My sister moved in with my husband and I this last November. She was having a fair amount of trouble with her thinking for a while and diagnosed with PSP in June of 2017. In an effort to help her I started reading and connecting dots on my own (since the doctors offered neither insight nor treatments for this disease). There is a book called "The End of Alzheimer's" (4/2017) by Dale Bredensen that has a supplement program for those with dementia. Since my sister has some dementia and the interference of the Tao protein in the brain of someone with PSP , I thought it was worth a try.
She has been following the supplement protocol as closely as possible for 2 months and I am beginning to see some improvements, namely, in her skin color, regularity, and better sleep. So far it has not had much of an impact on her balance, judgement, or speech. Part of this program is using CQ10 and turmeric too. There is much more included also. I'll continue giving her the supplements and look forward to having the discussion with her new neurologist at the first appointment in February.
This is a battle for sure. Anyone have any better ideas let me know.
HI , Try vitamin b1 as well it is well researched. Dave 1928huppmobile@gmail.com
I m a little using turmeric - curcuming about 3,000 mg i got in ebay and they helpa little I m going to try ayurvericd they said it works
Any ideas to help with sleep ? 
Living in Mexico with psp
My Husband Has PSP
mother with PSP in Italy. 
My Father 
