I am new to this website, but thought I would share my story.
My mum has recently been diagnosed with Corticobasal Degeneration at the age of 49.
For over 6mths me and my sister had been back and forth to her local GP, only to be told she was suffering from depression. Understandably this was an obvious diagnosis as she has recently gotten divorced from my father. The were childhood sweethearts since the age of 12. So after over 30 years of marriage, and having never had previous boyfriends, it was only natural for mum to be depressed to such a degree that it was severely effecting her physically....right??? WRONG!
It all started with the hand tremor. Her right hand to be exact. Why was it tremoring? Was it a reaction to her depression medication? Why was she slurring her words as if unable to say what she was thinking? Why was she falling in obscure situations? And why was it almost impossible to reason with her?
These are all questions in which I needed answered. Something did not 'fit right' with me. Along we go to the doctors...again! Even on going to the doctors she walked out in front of a car. Not a good start!
So the GP looked concerned as she was unable to perform easy tasks, as in pushing away from the doctors hands, or touching her nose. Had a fall cause brain damage? I had no idea. The doctor referred her to the A&E for an urgent brain scan.
4 weeks as an inpatient later, after a CT scan, Lumbar Puncture, MRI, and EEG & finally a PET scan, we were told the horrific news that she had Corticobasal Degeneration. A very rare form of dementia which does not respond to any medication and is rapidly progressive.
My once strong, independant, love filled mother had now been turned into a shell of her former self and it is only going to get worse.
Not alot is known about the condition, but all I know is that it totally destroys a human being. I felt I needed to share this experience, because it just goes to show that if you have a gut feeling that something is wrong, dont let it lie!
To make matters worse, myself and my sister have just recently had babies (my 1st and my sisters 3rd) and they will never get to know how much love my mum would have had for them. She always put her kids and grandkids above everything and that makes me sad
She is now a permanent resident of a care home and has been since leaving hospital, 4 weeks after diagnosis. This was the only option available as we would not be able to give her the care she needed at home as per the social workers