My lovely partner Derek passed away at home late on Saturday afternoon. He was only formally diagnosed with possible PSP in April of last year, having previously been diagnosed with stroke damage. He became bed bound from May and had declined quickly since then. He was 76. Our experience with this awful disease hasn't been good as I've battled against a brick wall with the medical profession all the way to get help for him. It has felt like a journey of isolation for me. My friends, district nurses and Derek's family have been there for him and me all the way, so a big thanks to them and also to everyone on this site, as in times of desperation this has been my only refuge. Also a big thank you to our local hospice who provided the help in the last few days of his life to make his passing a peaceful one. The only thing holding me together is the knowledge that he is now in a much better place without all the suffering. We all miss him terribly.
Take care everyone.