My sister passed away very peacefully yesterday morning unfortunately I was not at her side but I had seen her the day before. I never did win that battle for Continuing Care for her because of the delays by the bureacrats. I will leave others to fight that one. Everyone who writes on this forum I send my heartfelt thanks and support over the last 3/4 years because you all understood what it was like caring for someone you love with this horrendous disease. I pray that you will all be given the strength to care for those you love and for those who have PSP the peace and strength to enjoy each day and live it to the full. My hope one day someone out there will discover maybe not a cure but at least a drug that can help that will help to alleviate some of the symptons. Hang in there and dont let them grind you down. Start each day with a smile.
Lots of Love to you all