PSP Fact Cards: We are getting a lot of... - PSP Association

PSP Association

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PSP Fact Cards

PSPA_DebbieB profile image
PSPA_DebbieBPartnerPSPA
34 Replies

We are getting a lot of queries about the PSP Fact Cards. If anyone is interested in getting some, please send me an email at debbie.benadie@pspassociation.org.uk advising how many you would like and I will put them in the post to you. Many thanks. Debbie

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PSPA_DebbieB profile image
PSPA_DebbieB
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34 Replies
peterjones profile image
peterjones

hi debbie would you send those fact cards as far away as Australia !!!!!!! i really need something there,s not a great deal of people know anything about it and i must admit if i am out somewhere and i have a bad fall everyone would think im drunk because my speech is going and i sound like im drunk i hate to say that \\\ and i would not be able to explain to them what my problem is thanks a million mate if you could just reply to this as to whether you would send some or not i will give you my name and address via your em thanks again peter jones queensland australia psp sufferer

PSPA_DebbieB profile image
PSPA_DebbieBPartnerPSPA in reply topeterjones

Hi Peter, yes, we would send them to you in Australia. If you would like to make a donation towards postage, you can do so via justgiving.com/psp/donate

Best wishes,

Debbie

laroux profile image
laroux

Hi Debbie,

I will do the same. My husband has PSP, we are in Canada.

thanks, Joan

summergirlx476 profile image
summergirlx476 in reply tolaroux

Hi Joan, Where are you in Canada?

laroux profile image
laroux in reply tosummergirlx476

I think we've talked before, I'm in southern Alberta, Taber, which is inbetween Medicine Hat and Lethbridge.

Joan

summergirlx476 profile image
summergirlx476

Hi Debbie

We are in Canada as well and would like some these cards if possible. You have maybe set yourself up for some additional work. Thank you for the help in advance. Linda B.C. Canada

karentwin profile image
karentwin

Hi Summergirl. I am in BC too, Abbotsford. My Dad has PSP and it is at quite an advanced stage. It is so sad to see how quickly this horrible disease is taking a little piece of him every day. When people ask about my Dad and his condition, I hand them a card, as PSP is so difficult to explain.

maryam profile image
maryam in reply tokarentwin

Hi Karentwin

My mom has PSP and we live in Coquitlam. It's been more than 4 years and recently she is having difficulty swallowing.

You said your dad is at the advanced stage. Is he able to eat?

It would be nice to learn from you.

Hope all is well with you and your dad.

Maryam

shasha profile image
shasha

i have sent a contribution to you so hopefully i should get my cards soon =

shasha

tisha1953 profile image
tisha1953

Are there any such cards for CBD?

Momto5 profile image
Momto5

I'm in Nebraska, USA

What do I do to get a fact card?

Thanks

Moojuice219 profile image
Moojuice219 in reply toMomto5

Where are you in NE? Does your spouse have PSP? I’m in Omaha NE. My husband has PSP. He was diagnosed in Feb of this year after thinking he had Parkinson’s since 2016. My husband has had a rapid decline. 😭

Momto5 profile image
Momto5 in reply toMoojuice219

My father had PSP and passed away 6 years ago. I’m in northeast Nebraska. If you have questions that I can answer please ask. It’s a horrible disease and I’m so sorry for all you and your husband are going through.

jillannf6 profile image
jillannf6

you can get them form the PSP ASSOC IN TH UK

JUST EMAIL DEBBIE AND ASK FOR THEM TO BE SENT TO YOU

LOL JILL

:-)

ramkumar86 profile image
ramkumar86

My mother is suffering from PSP disease from last 4 years.we have struggled a lot in allopathy but did not get benefit .we have stopped allopathy treatment & started homeopathy& we are very happy because of the recovery she is doing.

Heady profile image
Heady in reply toramkumar86

Hi, how is homeopathy helping. I am a great believer, but have not gone down this road yet!

Heady

Wifey4U profile image
Wifey4U in reply toramkumar86

Could you share how homeopathy is helping, please? Would be so appreciated

marytea13 profile image
marytea13

Debbie Are u able to send them to me in Western Australia? Perhaps via email would be cheaper & I can print out & give to people. Thanks

PSPA_DebbieB profile image
PSPA_DebbieBPartnerPSPA in reply tomarytea13

Hi, yes I can send them to Western Australia, however we do ask if you could make a donation towards postage costs via our donate page on our website. We don't have the cards in email format. How many would you like me to send you? Best wishes, Debbie

jillannf6 profile image
jillannf6

hi debbie

i should like osem more say 30 thanks

jill friar

myjual profile image
myjual

j.banks57@btinternet.com

Please send iCards asap

Cuttercat profile image
Cuttercat

Dear Debbie,

We're in the US. Can you send to us?

Cuttercat

PSPA_DebbieB profile image
PSPA_DebbieBPartnerPSPA in reply toCuttercat

Hi, yes I can send you some of the fact cards in the US, however all we ask is that you cover the postage costs. Could you let me know how many you would like and then I can let you know what the cost would be. Thanks. Debbie

Debbie, I would like to forward this PSP website to a friend. Is it HealthUnlocked.com for the PSP only or something different?

PSPA_DebbieB profile image
PSPA_DebbieBPartnerPSPA in reply to

Hi, thanks for your message. You can share this link healthunlocked.com/psp which should take them to the PSPA page for them to sign up. Let me know if you have any problems. Debbie

skoe profile image
skoe

Hi Debbie

Good to see you yesterday

Wanted to make sure PSPA Helpline publicised on this site for all to contact

Thanks

Simon

Bunkers69 profile image
Bunkers69

Debbie I'll send you my email address, I would love to have info. My husband has PSP for over a year thanks. Sharon from Canada

Artteach10 profile image
Artteach10

What is on these PSP cards. I would be interested. Thanks.

PSPA_DebbieB profile image
PSPA_DebbieBPartnerPSPA in reply toArtteach10

Hi, they have our contact details on the front and then list 5 facts about PSP/CBD on the back. Hope this helps. Debbie

Hi there

Any way you could send me some in the Uk?

PSPA_DebbieB profile image
PSPA_DebbieBPartnerPSPA

Yes of course. If you send me your postal address to info@pspassociation.org.uk I'll sort this for you.

Grsrbhr profile image
Grsrbhr

s i would like some of the psp info cards. muy name is gary roiilnd ND have been diaGNOSED SAINCE 2014 SORRY ABOUT THE TYPOS AND THE ALL CAPS. iT HAPPEMS. i live at 151 huntington bay rd huntington, ny 11743. thanlks so much!! best, gary

Annah33 profile image
Annah33

Could you please sent me some of the fact cards as my family don't understand what I am going through.x

Adoey profile image
Adoey

Debbie, Would you please send me 6 of the PSP fact cards. I live in Utah and will gladly pay the postage. Thank you so much, Adoey

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