Mom started exhibiting the symptoms of PSP probably 5 years ago, frequent unexplained falls, poor eyesight, swallowing problems. She was finally diagnosed with PSP in Sept 2011, after yet another fall and ended up in A&E for the 3rd time that month.
I gave up my flat and returned home after learning the seriousness of the condition, I wanted to do my bit to help out.
Home help was arranged, and she was getting to begin with, 3 half hour visits per day from social services. The falls did not end there though, she was still having falls in between visits resulting in the occasional trips to A&E.
It was the A&E doctor who recommended that we consider placing mom in a care home, after pointing out to me that 'this was her 8th time there with an head injury since her diagnosis, it cant be good for her all these bangs to the head'. I had to agree, and asked for what help he could offer and who to contact.
It all went through pretty quickly, we had help from a company called Care Home Selection who located local vacant rooms and arranged for us to visit.
Mom was placed in a home 2 months later, April 2012, but she hated it there and was forever complaining about the lack of care.
We moved her again in July 2012, hoping a change of environment would suit her.
BIG mistake, mom complained even more and was quite often depressed, saying she wanted to go back to her own home. Her falls did not improve either, still ending up in A&E on occasions because she would not stay seated.
In October, we (the family) decided maybe she would be better off at home, with a personal assistant who could be there to keep a close eye on her.
We started the process of trying to get her back home by contacting her social worker, but after months of indecision, social services eventually said NO, they cannot meet the level of care mom needs unless she remain in a nursing home.
That was the beginning of Feb 2013. We succumbed once more to moms wishes and moved her again, she moved into another home, closer to the family home on 19th Feb.
Its early days I know, but she seems a lot more settled now and seems to be accepting that she needs to be in a Nursing Home, and cannot be as independent as she would like.
As I have said to her, 'you have taken care of everybody for long enough mom, it is time for you to be taken care of'