I have looked after my mum for 3 years since my dad died. mum was diagnosed about 5 years ago. I do have careers that help me now as I cannot do it by myself anymore.
We are now feeding mum with a syringe as she cannot open her mouth, she has refused a peg feed but still wants to eat, at the same time she says she does not want to be here anymore.
I am finding it difficult now because mum still thinks she can speak and gets annoyed that I don't understand her yet she is just making a moaning noise. I know she is still with it, but how much is hard to work out. Sometimes she is quicker on the mark than me!
Has anyone else been through this situation?
It is driving me crazy at the moment, I used to have so much patients but now I find I just get very annoyed and I feel so bad.
Does anyone have any advice? palliative care are involved and tell me to walk away but that is very hard when you are the only persons way to communicate and you see the person you love trapped.
Mum has become very stubborn and fixated on things, she won't let anything go, which is very difficult. I never know what is really important or not because it seems everything is the same to mum.
Is anyone else experiencing this or has?