Anatadine side effects: My mum recently... - PSP Association

PSP Association

9,255 members11,351 posts

Anatadine side effects

lomalle profile image
11 Replies

My mum recently started taking Anatadine 100mg a day but had to stop after 6 days due to the side effects, her eyes would not close and got really upset. Has anyone else had any bad effects from this tablet?

Written by
lomalle profile image
lomalle
To view profiles and participate in discussions please or .
11 Replies
superman888 profile image
superman888

Is it called Amantadine? If so I have never heard of it, but looking at the wiki page it says it is used for Parkinson's. Considering she has PSP and not Parkinson's then this drug is more a shot in the dark. If it causes side effects then contact your doctor.

MJ-Mark profile image
MJ-Mark

My dad takes liquid amantadine twice a day, no ill side effects here. At first, we believe it helped him, but he is getting worse with each passing week.

:-(

MJ

lomalle profile image
lomalle in reply to MJ-Mark

sorry to hear about your dad getting works mark, is he able to walk atall?

heinrich profile image
heinrich

my wife is taking Amantadine. From first 200mg a day she takes 250 mg a day.

Without Amantadine she woulldn't be able to do anything. If she takes too much, she becomes restless.

It was difcult for her, to open her mouth. 25mg more Amantadine had helped her, to

eat and swallow better.

Heinrich

Eileen9 profile image
Eileen9

I took Amantadine for 6 weeks and had many side effect from it. Overall I felt Ill and thought I had a flu of some kind. I slept a lot, completely lost my appetite, had blurred vision, headaches,,and severe dizzy spells. For some reason I did not associate these problems with my meds as I had not had problems with medicine before. Once the light bulb went on, i stopped taking Amantadine and felt 100% better.

lomalle profile image
lomalle in reply to Eileen9

Eileen, thanks for your reply. Sorry you've had a lot of problems with this drug but pleased to hear you have stopped taking it and feel much better. Mum has stopped taking it was doing more harm than good.

villagebabe profile image
villagebabe

I will try again, I guess I lost the first message before it got posted. all I said was that this sounds like all who have psp hear. That they are all different and react differently! hope these blogs have been helpful...they are all good. Lucille

bubbie profile image
bubbie

my husband has been on amantadine for a long time .we havenot seen any side affects either. he also was on a study drug for this whole year and was doing much better. now he is off it i see a decline we just learned that he had the placebo drug which we were so surprised as he was doing so much better. we so upset that the drug didnt work . this was the duvinitide drug. there is just nothing out there for psp.patients. please answer me bubbie

lomalle profile image
lomalle in reply to bubbie

hi bubbie, thanks for your reply. Sorry to hear about this placebo drug etc. No, there isn't much out there for psp sufferers, it's terrible in this day and age, i thought they would have come up with something by now. My mum is only taking sinemet with is not doing much.

bubbie profile image
bubbie in reply to lomalle

it is awful that there is no drug to help psp patients. it is so sad watching your partner for 41 yrs. go down hill. im having such a hard time with this. we have been all over to different drs. but no advice on what to do. they have money for so many other illnesses but nothing for psp. most people have never heard about psp. what a shame. take care and be in touch. bubbie

hubetsy profile image
hubetsy

My husband was prescribed Amantadine years before his diagnosis went from Parkinsonism to PSP. It was, I believe, given him prior to trying carba dopa / leva dopa for PD. We stopped the Amantadine when I discovered he had been going to the small local neighborhood grocery store and stealing salami from their salad bar! He came in from "walking the dog" and sat down at the table. My son observed him eating something from his pocket. We inquired and finally he admitted the theft. His pocket was full of salami. "They can afford it." was his reply when we pressed him about stealing. (He wasn't even hungry but did love salami). I took notice of the pockets of his other trousers. They had grease stains! We laugh about it now. And we laughed about it when I shared the story with my support group. Mind you, I only discovered the side effect of the Amantadine when I did a search. Disinhibition (?) was a side effect for a tiny percentage of patients.

I have found the many drugs we've tried over the years have had side effects. I suspect that many side effects are specific to the patient and not a blanket issue with PSP patients. At this point, the only pharmaceuticals he uses are related to prostate and bladder issues. We've also recently introduced CBD oil. Jury is out as to the effects. We are hoping and always hopeful that Chris will regain his ability to speak. Also, a better ability to walk would be nice. But, it's mostly the talking that I would love.

Best wishes to you and your family as you continue on this path. As difficult as it can be, I have learned a lot about myself and the relationship I have with my husband as well as family and friends.

Cheers,

betsy

You may also like...

Drugs/Side Effects/Lack of Sleep and CHC

the second. After two days, I took off the patch and rang the doctor . I said that I had done this...

Medications causing severe side effects PSP need ideas for non medical alternatives

Cymbalta. She had bad reaction to C. Levodopa and can not take. She is in pain but also had toxic...

OMG scopolamine 1.5 mg comes with many side effects

to get himself out of bed for well over a year,he got himself out of bed 4 times moving things,...

View from the \"other\" side

balance is so bad that I need help. Help takes the form of a wheelchair. I have had it for 5 years

Side affects of parkinsons pills

trying him on siminet this he has been on them two days and has been complaining of flu like...