I'm sitting here with my Mom who is in her last days. She was first diagnosed with CBD 2 years ago then PSP 1 1/2 years ago. We first started seeing symptoms about 5 years ago. My stepdad died in March 2 from cancer & I had to put Mom in a nursing home on May 2 because she needed 24 hour care. Because of swallowing problems & choking, a pegtube was put in on April 26. A month later she was back in hospital because there was an abscess. On June 4 another one was put in. She was in & out of the hospital until end of October. My Dad died on Oct 9 from kidney failure. On Nov 1 I put Mom on Hospice. That was the best decision because I had more eyes watching her & they've helped me to be aware of what was happening. Just in the last 2 weeks Mom has steadily declined. The last year has been tough but I am glad that I can say that I did all I could do for them. I wish I would have found this site before now but maybe I can help someone else.
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