still learning about psp do you lose your ... - PSP Association
still learning about psp do you lose your vision completely from psp
You dont lose vision. YOur eye movemnet starts slowing down as a result of which you find it difficult to see things on the sides , may find difficulty in lowering your eyes act. so your straight vision would stay fine . you will find it increasingly difficult to change focus.
ok that is interesting . my dad does not have the up an down and side to side is difficult . that could be why hesays his eye is blurry or he sees double maybe that is the focusing part
thanks
I have come to the conclusion that as mum sometimes actually goes cross eyed and her brain has never adjusted to this double vision, that it is a fluctuating thing and it would make sense if the cause is the alternating rigidity and weakening of her muscles. So just as she sometimes cannot control her hands/legs/swallowing etc etc due to muscular changes, so are the eyes affected. Therefore her eyesight comes and goes but we are no longer able to tell as she cannot partake in reading tests etc from the opticians for various reasons like not being able to control where she looks or to say what she actually sees. I sometimes ask if she still sees double and her answer is always yes. She was staring intently at the tv today but rarely does. Likewise the other day she suddenly picked up a crumb from her lap yet other days she doesn't even see her food coming to her mouth and I have to touch her lips to get a response.It goes to show how unpredictable this all is.Don't forget the iris itself is also a muscle. Mum's pupils are constantly constricted, like pin holes.
my father´s vision its terrible, he doesn´t moves his eyes, they seem iced, and vision its too poor from one year to now
thanks for your reply my dads is to mainly one eye it would be blurry on and off now it seems like it is more blurry often
i have ppsp and hav e ha dot giv eup usin gcontact lenses as the eyes are clsoing too mcuh to getthem in
But i ha ve had an annual eye tes tand for th e 1st item in hyears my vision si no worse!!!
(I have been shortsighted since the age of 8 and am now 66)
the downward gaze si afffected with PSP and the vision will become more blurred
but blindnes should not be a problem
as far as i know
lol JIll
thanks for the reply my dads eye seems to be blurry more often before it might last 2 days now its along time so I think that might be permanent
As you read more and more on this site and others you will soon realize that the effects of PSP on each patient can be different. Yes there are some similarities but there are also differences in what occurs, when it occurs, to what extent it occurs, etc. etc. etc.
You'll hear about "types of PSP" and "fast PSP vs slow PSP" and other things. However, the bottom line is "it's PSP!" I doesn't make the struggle any shorter or easier to worry over these things when it is most important to dwell on the current struggle you are facing with your loved one. It would be nice if PSP were in a nice neat package like other diseases but unfortunately that is not the case. I'm not trying to discourage you from searching for answers (slow vs fast, or what happens next) but only letting you know that those answers are hard to find and may not apply to PSP in your patient/loved one. Unpredictablility is the word I have for PSP.
jimandsharynp
I forgot to address the vision issues specifically in my last response to your message. Vision is another thing that goes bad in PSP. However, here again, it could be tunnel vision for your patient, inability to read, issues with extremely dry eyes, blindness, inability to open the eyes, inability to close the eyes when asked to, blurred vision, etc. PSP is different in patients often so there are not predictable things you can know in advance. Think of all the complex points in the brain it must take to do everything the eyes must do. Now realize that PSP is advancing in the brain at a different speed in each patient and affecting very small areas at a time. Who can say which of the many, many pieces of brain tissue that control the eyes will be attacked by PSP/TAU next? If we could only know what is ahead! However, maybe we are being protected in a way by not knowing what to expect next. If we knew it might be devistating to us all. As it is we must take one issue and day at a time.
jimandsharynp aka jimbo
thanks for your reply I agree we need to take it one day at a time,
yes kt woudl be good to take each day at a time but i have always liked plannign things and lookgin fwd (the present has always been difficult ot cope with for me......)
is irt nto possibel to look fwd as well?/
lol Jill
When/how do you tell someone that PSP is terminal?
How do you know that your are doing enough?
Do you know about palliative care?
