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Pfizer Vaccinated with APS/Gene Mutations & Pulmonary Embolisms

jusroxy1 profile image
7 Replies

Hello,

I have followed this website for years and it has very beneficial information. I have 2 copies of MTHFR gene mutation. I was also diagnosed with APS in 2013 after a DVT in my right leg, a pulmonary embolism in each lung, and my heart was enlarged. Initially, I was put on Warfarin but my INR fluctuated far too much I got additional blood clots in my lungs. I was put on Lovenox for a year until I was considered stable enough to switch medications. I was put on Xarelto in 2014 and so far I have been considered stable. I received my second dose of Pfizer on April 9th. For those that may benefit from this information on April 10th I woke up feeling fine, about 11am I felt unusually tired and started having some body aches. I fell asleep and woke up around 1pm. I felt much better but started having some nausea & had some ginger tea and it helped with the nausea. Shortly, after that I felt fine. Today, April 11th I woke up feeling better just a little tired. I just wanted to share in case someone in a similar situation was considering getting vaccinated and this information could help someone. I realize that everyone is different and needs to consult their doctor.

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7 Replies
MaryF profile image
MaryFAdministrator

This is super helpful for people to read, thank you for taking the trouble. MaryF

HollyHeski profile image
HollyHeskiAdministrator

Thank you for sharing, interesting to know.

APS4EVER profile image
APS4EVER

Thank you so much for sharing. I get my second dose of Pfizer next week. I am still very concerned that the vaccine won't protect against the blood clots common with Covid. My PCP said that I should still be very careful, and there isn't enough information about any of it. It's like we are one big trial to see what happens.

APS4EVER profile image
APS4EVER in reply toAPS4EVER

I received my second Pfizer shot yesterday, and today I feel like I was run over by a bus repeatedly. Body aches, fever, stomach issues. I had my quarterly blood work done between the 2 shots. My rheumatologist said that the vaccine triggered a flare-up and could last up to a month. 🤒

jcgc profile image
jcgc

Those reactions sound pretty normal whether you have APS or not for Pfizer. I had my second Moderna vaccine on 2/25. After the first one about 9 days later I developed what they have termed Covid Arm. It turned very red and extremely itchy for days and the redness lasted for weeks. After the second shot got the red and itchy arm that day. It also felt firm and swollen. I had a low temp and generally didn't feel well for less than a day starting the day after.

That said, I would happily do it over again.

Here is a list of common reactions to the Pfizer vax. fda.gov/emergency-preparedn....

robertbob profile image
robertbob

Thanks. Is good to hear how it went and felt better quickly. I had Pfizer vaccine yesterday and woke up this morning feeling fine but in early afternoon had headache and have felt more and more tired. If same trajectory as u then will hopefully be ok tomorrow morning.

robertbob profile image
robertbob in reply torobertbob

update - feeling fine now except slight headache and having big breakfast. btw I asked GP for Pfizer instead of AZN on account of APS and they were fine about that.

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