Thrombophillia : Thank you Holly Heski... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Thrombophillia

Zamalek profile image
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Thank you Holly Heski for your explanation.I have triple positive APS with two venous clots. I didn't realize APS came under that umbrella term, stupid, of me.

So then all recommendations for all thrombophilia patients must be relevant to all of us? re Beverley Hunt?

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Zamalek
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Hi, I'm too triple positive and have secondary Sjrogens. I don't think we can lump us all together with the recommendations, as what works for one may not work for another. I have found we are all so different in how we react. It's good to keep an eye on new developments with thrombophilia, but any treatments must be discussed with our own APS specialists.

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