Hi
I have APS and I am on warfarin for life. However I don’t have a specialist and I find GP’s just don’t know what it is so they go vague and don’t take it seriously.
I was diagnosed after a TIA and the stroke specialist (who was so good) tested me over the course of a year and found I had APS and put my on warfarin however as he is a stroke specialist he signed me off his books as I no longer need to see a stroke specialist.
Since COVID it’s got me thinking I feel a bit left adrift with the APS as who would I go to for guidance etc and I worry that if I got ill the staff at A&E generally don’t understand APS either. I’ve been to A&E a couple of times with hot painful thighs and they did the blood test to check for DVT and said it was clear but I’m sure I’ve read that them blood tests don’t work/register for APS patients?
I very recently before lockdown was also diagnosed with Lupus SLE so I have met the specialist once and concentrated on that and didn’t really talk about the APS.
So I wondered if I found a recommended specialist in the Manchester/Lancashire area that I could ask for a referral via my GP.
Thank you 😊