APS specialist near Manchester UK recommendations?

[Bobbydoodle]

Hi

I have APS and I am on warfarin for life. However I don’t have a specialist and I find GP’s just don’t know what it is so they go vague and don’t take it seriously.

I was diagnosed after a TIA and the stroke specialist (who was so good) tested me over the course of a year and found I had APS and put my on warfarin however as he is a stroke specialist he signed me off his books as I no longer need to see a stroke specialist.

Since COVID it’s got me thinking I feel a bit left adrift with the APS as who would I go to for guidance etc and I worry that if I got ill the staff at A&E generally don’t understand APS either. I’ve been to A&E a couple of times with hot painful thighs and they did the blood test to check for DVT and said it was clear but I’m sure I’ve read that them blood tests don’t work/register for APS patients?

I very recently before lockdown was also diagnosed with Lupus SLE so I have met the specialist once and concentrated on that and didn’t really talk about the APS.

So I wondered if I found a recommended specialist in the Manchester/Lancashire area that I could ask for a referral via my GP.

Thank you 😊

[MaryF Administrator]

Hi, here are some to consider:

1. Professor Ian Bruce Rheumatology Clinical Lead The Kellgren Centre of Rheumatology Manchester Royal Infirmary Oxford Road, Manchester M13 9WL Telephone: [phone] 2. Professor Charles Hay Consultant Haematologist Department of Haematology Manchester Royal Infirmary Oxford Road, Manchester M13 9WL Telephone: [phone] 3. Dr Rachel Gorodkin Consultant Rheumatologist Department of Rheumatology Manchester Royal Infirmary Oxford Road, Manchester M13 9WL Telephone: [phone]

I hope this helps. MaryF

[Peegdowg]

Hi

I see Dr Rachel Gorodkin annually at The Kellgren Centre, Manchester Royal Infirmary. Have always found her to be very knowledgable & easy to talk to.

I was only referred to the Centre after being admitted to the Renal ward at MRI in 2014 (for what was eventually diagnosed as gall stones) & they couldn’t understand why I didn’t see a specialist for APS, even though my diagnosis was back in 2004.