Two positive tests

[Danni789]

Hi everyone, I had an antiocardiolipin test come back positive in January and one come back a weak positive 37 yesterday but docs have said no to thinning my blood and to repeat the test in 12 weeks, I have lots of joint pain, muscle pain etc is this right thank you all xx

[Sevenstar]

Hi Danni789.. I had pretty much the same thing , he said no to warfarin as he said I was borderline for that and to take Clopidogrel or aspirin , possibly because so far I've not had any clots or strokes etc I don't know 🤷‍♀️ !

I also am plagued with joint and muscle pain and tiredness , I'm guessing this is because the blood is sludgy, no doubt others on here will explain as I'm still very new to this .

[HollyHeski Administrator in reply to Sevenstar]

You've explained well, sludgy sticky blood can give many symptoms.

Doctors usually prescribe hydroxychlorquine for muscle and joint pain.

Clopidogrel or DOACs can also be prescribed for APS.

[Danni789 in reply to Sevenstar]

Thank you they have said so far because I haven’t had any miscarriages etc (I was on the pill for 12years 🤦🏻‍♀️) that I’m not a risk factor, I’ve been struggling mentally with various issues I think they just think I’m bonkers tbf

[Sevenstar in reply to Danni789]

Don't think that , they thought I was a hypochondriac at first because I was going to my GP so often with so many different symptoms I could literally hear their eyes roll ! Now they know as do I that my symptoms were both many and very real.

[HollyHeski Administrator]

Your doctor's may be waiting for the 2and round of blood tests before trying you on anticoagerants.

After this, ask your doctor's for a trial of anticoagulants to see if your symptoms improve.

[Danni789 in reply to HollyHeski]

Hi thank you for replying, I’ve had two tests 3months apart but they want another one, just thought all the pain was in my head x

[HollyHeski Administrator in reply to Danni789]

Believe in your body, many of us are made to believe it's in our head and have a horrendous journey to get diagnoses. So we have empathy with you, the key is to get an APS specialist that will join all the dots together.

[Danni789 in reply to HollyHeski]

Thank you going to call the docs on Tuesday, rheumatologist said no too so I asked to be referred to heamotology for a second opinion thank you for your advice xx

[HollyHeski Administrator in reply to Danni789]

With virus you may have to wait for appoitment sadly but keep us in the loop to how you get on.