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edgewater100 profile image
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Does anyone get botx injections for migraines?

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edgewater100 profile image
edgewater100
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MaryF profile image
MaryFAdministrator

I think there are some on here that have had it, and found it beneficial, however I don't have any personal knowledge regarding using it. MaryF

zzcat profile image
zzcat

Yes, and would not give it up for the world. I started on them when they were experimental here in the US as my migraines were so frequent. You have to give it a few months, but they work. I haven’t had one it at least 8 years, perhaps longer.

They are now approved by the FDA so covered by insurance, which is nice, and I’m able to get the Botox more frequently. They don’t hurt, and work by making the nerve that triggers the headache unable to activate. One odd thing is that you might get, especially in the beginning, is a painless migraine. You could feel throbbing, but no pain. Odd sensation.

I highly recommend them! Feel free to ask me any other questions you might come up with.

Susan

edgewater100 profile image
edgewater100 in reply to zzcat

Do you also have APS?

zzcat profile image
zzcat in reply to edgewater100

Yes, first blood clot at age 17, but not diagnosed until my third one at 28 after a TIA. Also have Lupus, RA and GCA. I was sent for the Botox by my rheumatologist and I have never had an issue with it.

They are tiny amounts that go subcutaneously under scalp under hair line and also into back of neck in area where the headache actually triggers...go figure. You don’t feel the pain of a migraine until up in your head but if the one area in back of next can’t activate you can’t get it. For me it’s been a simple permanent fix with no ongoing drugs.

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