Hematomas: Anyone have there’s in your... - Hughes Syndrome A...

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Hematomas

edgewater100 profile image
7 Replies

Anyone have there’s in your arms and legs and sometimes break under skin?

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edgewater100 profile image
edgewater100
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7 Replies
HollyHeski profile image
HollyHeskiAdministrator

Hi no, but it may mean your medication needs tweeking? Have you spoken to your doctor?

lupus-support1 profile image
lupus-support1Administrator

Yes. Before I was diagnosed with SLE, I had bleeding under the skin in both ankles. I had a “classic” response from an old fashioned Professor of medicine, who looked over his half-rimmed glasses and replied, “Your socks are too tight!” Needless to say, I didn’t wear socks, only tights!

I also have tiny pin pricks of red socks indicating vasculitis. I have vasculitis of the bowel!

I suggest you take photos and see your doctor if you are concerned.

With good wishes,

Ros

edgewater100 profile image
edgewater100 in reply to lupus-support1

What type of Doctor do you see for vasculitis,Rheumatologist or Hematologist?

Thanks

lupus-support1 profile image
lupus-support1Administrator in reply to edgewater100

I see a rheumatologist. It was Prof. Hughes. I rarely see a haematologist - only for my abnormal immunoglobulins. Vasculitis has affected my bowel so I saw a gastroenterologist; and for the bizarre angiomas in my stomach, which can bleed, so has to be zapped with a laser!

There should be one specialist who co-ordinates your care & who will refer as necessary, as Dr GR Hughes used to say, "To hold my hand!" He never needed anyone as his diagnosis & treatment was spot on!

KellyInTexas profile image
KellyInTexasAdministrator

Yes. I have had this. It is red first, then turns to purple. Large areas, ( the size of an American half dollar) or smaller areas ( the size of an American quarter.)

Like Ros, I have also recently been diagnosed with Vasculitis. It’s been a murky diagnosis because the full outbreak occurred two weeks after the first infusion of Rituximab- so the ANCA is negative, and a punch biopsy would be rendered negative as well. The Rituximab would mask the test results.

mariamoo1 profile image
mariamoo1

I have this all the time, I am on apixoban. My gp says, that it is normal with any blood thinner. And dry skin will make it more prone. I also suffer with it in my stomach, but I have pancreas insufficiency. So I just except it? Also at times, like now, the blood vessels look terrible all over me blue and bulging. And the horrible mottled skin, plus the red butterfly effect on my face. I find it hard now to find make up to conceal it, especially with dry skin. And on a tight budget, as I have had too give up working due to the extreme effects of Aps. Claiming NI based ESA in the UK. Not much, and still have to pay for my meds. But I buy the pre-paid prescription. I don’t know if I could get any other benefits as it’s a total nightmare to find out!

jetjetjet profile image
jetjetjet

I had the discoloration on out side of knee's recently . Also had it on hip after my 2012 Core- decompression on right hip . It was then it was refereed to as Rain-bowing.Hip was attributed to bleed after surgery - knee's they weren't quite sure - no new clots at that time as i remember .Just that reddish -purplish - bluish coloration. Veins showed the most . Gone in about a week or so .