I have just been diagnosed with Pyoderma Gangranosum which has given me leg ulcers on my ankle. Has anyone else been diagnosed with this?

[Loobylooloo]

I have had APS for around 45 years and been diagnosed for around 35 years. I have had a number of clots, DVTs and TIAs also haemolytic Anaemia amongst other odd things. Recently I have had Atrial Fibrillation and the Pyoderma Gangranosum.

[MaryF Administrator]

HI there, are you currently on Warfarin with a decent INR setting? Also do you have a good Hughes Syndrome/APS specialist looking after you? Other areas to think of which affect the circulation is, poor thyroid function, and poor B12 levels, these also affect circulation, which is unfortunate if you already have sticky blood etc. Unfortunately at times these are not picked up, particularly with the narrow Thyroid testing most patients are offered, which is why many of us do our own private testing which we order ourselves. I hope you can get some good help for this, Hopefully your vitamin D is regularly monitored also.

omicsonline.org/open-access...

MaryF

[Loobylooloo in reply to MaryF]

Hi Mary, thank you for replying. I am on Warfarin and levels are supposed to be around 3.5 but because I have just had a course of Prednisolone are a little lower but not much. I have good doctors and also am in contact with St Thomas’s. My thyroid has been tested with the three components within the last year, I seem to have every test known to man! I also take vit D regularly too. My previous Haemotologist told me once that he had been at a conference and been told that leg ulcers were part of APS. It I didn’t question him and sadly, he has since died.

[MaryF Administrator in reply to Loobylooloo]

It still may be worth doing a private panel, which is more thorough re the Thyroid, I was told mine was fine for 15 years and it was clearly, not so! MaryF