A film of Professor Graham Hughes' in... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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A film of Professor Graham Hughes' in Australia a couple of years back, a great film

MaryF profile image
MaryFAdministrator
7 Replies

This is a good interview.

psychscenehub.com/video/int...

psychscenehub.com/video/lup...

MaryF

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MaryF
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Wittycjt profile image
Wittycjt

I learn something new “again” each time I hear Him speak. Thank you Mary

lupus-support1 profile image
lupus-support1Administrator

Thank you for the reminder!

MaryF profile image
MaryFAdministrator in reply to lupus-support1

They are really good, my GP practice has been watching them. MaryF

Penelope-Mary profile image
Penelope-Mary

Thank you Mary, was v interesting. The lupus follow on one was as well. A few years ago I emailed Prof Hughes from Australia asking him to put in writing so I could convince the warfarin lab that an INR around 3.5 was my ideal. If I’m below 3 all sorts of weird and not wonderful symptoms flourish! He ( or a colleague further down the chain) replied promptly and it has made my quality of life much better.

🌟 again thank you.

Penelope-Mary

MaryF profile image
MaryFAdministrator in reply to Penelope-Mary

I am so pleased to hear that your proactive stance on this worked out, great news, very pleased for you. MaryF

Wittycjt profile image
Wittycjt in reply to MaryF

It’s Sunday, and this is repost worthy🤗

Lure2 profile image
Lure2

Thank you Mary for showing Prof Hughes "in action" and hear him talk.

Very interesting about neuro-psychiatric manifestations in APS and also to see a worldmap with a red dot for Lupus-patients. I saw that Italy and Greece among others did not have any red dots. I at once thought of the healthy food they eat there (just a thought of mine).

Thanks again!

Kerstin

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