Antiphospholipid Antibodies Syndrome

[Heatherrae]

To the girl with APS Syndrome!! I have the same thing. You need a Hemotologist they are the blood doctor. However I went to the specialist after losing two baby's that I was trying for with a third pregnancy. He had me take 81mg baby Aspirin daily while I was pregnant. I went on to have 3 healthy children! I'm now 43 and take the baby aspirin every day to keep my blood thin. You have to find out if it's primary or secondary. That Hemo you went to is a quack! Go somewhere else!

[8675309]

Hi there, I’m new here.

I was diagnosed with APS after several miscarriages. I had a great doctor in LA who diagnosed me, and treated me with Lovenox. Within 5 Years I was blessed with three beautiful children, now ages 7, 8 and 10.

I am very active, exercise, eat healthy... all that, but over the last year I have been getting Raynauds symptoms ( blue fingers when cold) and flare up symptoms on a monthly basis where I am extremely fatigued, achy and have minor (yet dibilitating) symptoms. I have elevated ANA, IGA,s but I am not diagnosed with anything but APS.

I’m trying to figure out what can prevent these flare ups. Hoping someone can help.

[lupus-support1 Administrator in reply to 8675309]

IMHO, I think you need to see a rheumatologist who is a lupus specialist. I am not suggesting you have SLE, but in my experience, lupus specialists are far better with APS/Hughes syndrome and other autoimmune diseases. Raynaud's can be Primary or Secondary, just as APS can be Primary or Secondary. You need a good specialist.

With good wishes,

Ros

[MaryF Administrator]

Hi, which person are you referring to, are they on here, or is it a newspaper article or something, do clarify if you need help. MaryF