Feeling terrible

[Tim_Thorpe]

Feeling terrible last few weeks feel like I have hang over plus aches and pains any ideas ? Aziophrine was put up to 200mg daily from 150 in February for my lupus sle

[Lure2]

Hi.

I am sorry you feel so bad but I do not think I am the person to help you. I just want to know if you still take Warfarin which INR you have at present?

Best wishes and Good Luck to feel better.

[Tim_Thorpe in reply to Lure2]

My target inr is 4 my inr yesterday was 3.5

[lupus-support1 Administrator]

Please go to your GP to investigate.

Sorry you are having such a rough time, but you need to rule out any low grade infection, of which you will be prone, with a compromised immune system.

With good wishes,

Ros

[Tim_Thorpe in reply to lupus-support1]

Asked for a blood test today for aziophrine plus ck level just to see if my ck level was up which may show my lupus is flaring up

Seeing prof hunt on the 10 April but feel so bad don’t think I can hang on that long 😐

Could it be something as simple as vitamin b12 deficiency

[lupus-support1 Administrator in reply to Tim_Thorpe]

It could be anything Tim. I agree with you, you can't continue in this way. You need a wide range of blood tests. Ask your GP to contact Prof Hunt if you are unable to contact her.

[MaryF Administrator]

Sorry you feel bad, perhaps a check in with the GP while you wait for your appointment with a Prof Hunt, perhaps they could re check your D, B12, Iron, Thyroid etc and CRP and ESR to see if that shows any clues, any good GP would do that plus perhaps Liver Function etc? Is your GP flexible and approachable? MaryF

[Tucson]

You can ring Prof Hunts team and be put through to a clinician, I've found they do listen and try to help, it's worth a try. The number will be on your appointment letter.

[GinaD]

Sorry to read your post. I wish I could do more, but know that I’m sending thoughts of support across the pond. Let me know how things progrss.

[Fusch]

I developed flu like symptoms when my azathioprine was increased in a big jump - do you think it might be linked for you? Worth considering a reduction in the dose?