Breathing

[amy1808]

Hi guys

Anybody had breathing difficulties when INR low ?

[Lure2]

Hi Amy,

O yes and together with breastpain!

I had a lot of those issues before I was properly anticoagulated at a steady INR that was high enough for my symptoms. (at least 3.5)

Take care! You should not have difficult to breath.

[Lure2 in reply to Lure2]

Also see your question 2 months ago. You talk about leaking heartvalves and breathlessness. You need a Specialist of autoimmun illnesses as a GP and a Neurologist do not always understand what this illness is about - too sticky blood!!!

[MaryF Administrator]

Hi, this has been discussed with others before on here, are you being properly monitored by your hospital/consultant regarding your INR and this, if it is a new symptom? MaryF

[amy1808]

Hi guys , well ended up in Hosi today , spent several hours in A&E only to be told I have a virus . All tests came back clear for my heart and lungs .

My INR was very low last week. 2.4 on self test , 3.5 self test this morning, Hosi did vein test and it was 2.8 so my self test of 2.4 last week must of been very low 🙈🙈

[Lure2 in reply to amy1808]

Have you now been sent for an Echcardiography with doppler you talked of before?

What did it show? Try to get your INR steady.

[amy1808 in reply to Lure2]

Hi , no , having a 24 hour heart monitor fitted .

[Lure2 in reply to amy1808]

This tricky illness we have, hide away, and sometimes they must use sofisticated methods like Ecocardiography with doppler. I know you have tried to get it before.

Did you mention leaking heartvalves on our site before?

[amy1808 in reply to Lure2]

Yeah , they checked it out yesterday all seemed fine with it and not causing me any problems

[HollyHeski Administrator]

Glad you got it checked out and reassured - need to get your INR up & keep it there, viruses can effect it too so double trouble for you.

Really hope you start to feel better soon xx

[buckeyerose1]

That is one of my main symptoms. It just gets hard to get a lungful of air, difficult to explain really, but I generally take a little more warfarin or a couple aspirin or ibuprofen when I feel like this. I was diagnosed in 2011 after DVT's and bilateral PE's, also had 4 pregnancy losses, but had my miracle baby in 1990 and got to keep her with us. Major problems with her placenta and birth anomalies, but she's great now.

Anyway, yes, I do have that short of breath feeling when my INR gets low. My doc is pretty dumb when it comes to this, and pays no attention, so I don't get INR very often, I just know my body, and when I need more or less warfarin. I get an INR now about twice a year.

My target INR is 3. What's yours?

[amy1808 in reply to buckeyerose1]

Hi

My INR is supposed to be 3.5 - 4 . Hard to keep it in range at times . I self test every other day which is a god send . Breathing a little better . I have bad digestion problems at the moment to . The more research I do the more I come up with different things. Being 50 now I have found out it can be a rare symptom of the menopause .

My neurologist started me on Amitriptyline in February and my life became a whole lot better and then this has thrown my body into confusion. I really thought I had turned a corner , I felt amazing . Now back to square one nearly 😕. I could understand it if I drank , smoked and ate rubbish but I don’t.

So at the moment not sure what is causing it ,APS or Menopause 🤔xx

[Lure2 in reply to buckeyerose1]

Hi buckeyerose1,

You should have a Specialist of autoimmun illnesses. AN INR twice a year is not acceptable when having this illness.

I wonder who is responsible for your Warfarin and testing twice a year? Does that Doctor know that you handle the Warfarin yourself and take a little more when you feel for it?

Perhaps you selftest?