Government benifits

[Tim_Thorpe]

Does any one know if you suffer from antiphosolipid syndrome and lupus sle what government benefits might you be able to claim ??

[Tim_Thorpe]

Thank you 👍 work for my self but really struggling with fatigue and tiredness etc

[Wittycjt in reply to Tim_Thorpe]

So sorry about this. It’s extremely hard when sooo fatigued. Good luck, the sooner you check it out it will be one less thing you have on your mind to add to your tiredness, best of hopes for you

[HollyHeski Administrator in reply to Tim_Thorpe]

I also work for myself and suffer with fatigue, so appreciate your frustration with not getting any financial support.

I gave up trying, my hours vary depending on the work and they just didn't understand this.

Will be watching your post with interest- let me know what you find out.

[MaryF Administrator in reply to Tim_Thorpe]

As well as the CAB some larger surgeries can point you in the direction of your local disability adviser, I hope I am not too out of date with that information, I know they used to be around when I lived in London and needed one. Just make you sure you have the correct support in place when you try to apply, there is a strict criteria and it is tough out there for those trying to claim benefits.

focusondisability.org.uk/pe...

MaryF

[mariamoo1 in reply to Tim_Thorpe]

I too struggle with the fatigue, no one seems to understand. I am off work at the moment, claiming ESA. I have an appointment on the 13th with benefits, I have had to cancel the last two as I have been to un-well to even leave the house. I cannot cancel the 3rd or the ESA will stop.

I had a stroke last May, a DVT, in January, un-explained kidney problems 10 days ago.Also at the moment my INR is too low, 1.5 instead of 3.5. I am having to inject with Fragmin, my dose of warfarin is being put up and down like a yo yo every 3 days. I have never got to my 3.5. The worst was over 10, when the GP called an ambulance and had a Brain MIR. My worry is , when I have both the high warfarin and the injections, I get a very tight chest with pain. My breathing is shallow and rapid. I feel my heart racing, I have a headache, I cannot balance or think straight. I ache. I have hot sweats and shivering. I also fractured my humerus at the top of the ball last December, it is displaced. At the time the surgeon said it needed operation, plate and screws. I got as far as the operation trolly, only for the surgeon to pull out of the operation due to my blood and stroke. I am left on strong morphine for the terrible pain, as 4 months on my arm is still fractured and displaced. I had it re X-rayed last week, still broken. I also get the hip pain, have raunauds. Have the blood spider rash in most places, and the mottled skin. My employer is trying to sack me, for being off work to long. We struggle to pay our mortgage and bills. If anyone else feels like this please advise me. I live in the uk, Norwich.

[mariamoo1 in reply to mariamoo1]

Sorry me again, I also take hydroxychloroquine 200mg, been on that 3 months, it makes me feel sick, so I also have to take anti sickness.

[Tucson]

If you go on the work and benefits website you can take a trial test and get pointers in how best to answer the questions posed. I claim Pip and get standard rate Living and enhanced rate Mobility. Benefits and work I always get it round the wrong way.

benefitsandwork.co.uk/

[jetjetjet]

what country do you live in and if in States what State are you in Tim ?? I am in N.H.

[lloydyuk]

Tim my understanding of the system is any benefit is dependent on how a particular condition affects a person rather than the condition itself. I think this was the significant change from DLA to PIP.