Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for October 2017

Could Pelvic Congestion Syndrome be related to APS

I have been diagnosed with both. GYN has referred me to a vein specialist. Will see him in 2 weeks. Not covered by Ins. Anthem of Colorado (USA) I would like...

I have been diagnosed with both. GYN has referred me to a vein specialist. Will ...

Karen56

•7 years ago

22 Replies

SHINGLES and APS

I recently was diagnosed with Shingles , I have lupus etc. I was started on some medication for it which I had to take for 7 days 5 tabs a day. I finished...

I recently was diagnosed with Shingles , I have lupus etc. I was started on som...

teadonna

•7 years ago

12 Replies

Aps and blood pressure

Does anyone know if APS can affect blood pressure, for the last month (that I know of) my blood pressure has been a bit high. It's was 129 over 92 yesterday....

Does anyone know if APS can affect blood pressure, for the last month (that I kn...

Saralmac

•7 years ago

3 Replies

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itchy skin

Hi just wondering is anyone has had itchy skin,all over and also my skin looks like I have a tan.,it comes and goes.

Hi just wondering is anyone has had itchy skin,all over and also my skin looks l...

littlesinger1

•7 years ago

10 Replies

Optic Nerve Atrophy ( Image Two of Three)

Please refer to Post one of one for explanation

KellyInTexas

Administrator•7 years ago

8 Replies

Optic Nerve Atrophy ( Image Three of Three)

Final scan / test result. Once again, please refer to Image one ( post one of one ) for explanation. Hoping this may help some of you with preserving some...

Final scan / test result. Once again, please refer to Image one ( post one of on...

KellyInTexas

Administrator•7 years ago

Optic Nerve Atrophy : Image one of Three

I see a neuro- Opthomologist. My specialty Hematologist said I am continuing to have strokes to the optic nerves. The tiny vessels which supply blood to the...

I see a neuro- Opthomologist. My specialty Hematologist said I am continuing to...

KellyInTexas

Administrator•7 years ago

28 Replies

not sure if my memory is shot or if its mostly depression

I keep forgetting simple but important things. So yesterday, I put a pan of water on the cooker and then went upstairs to use the computer. About 30 minutes...

I keep forgetting simple but important things. So yesterday, I put a pan of wate...

charlieab

•7 years ago

18 Replies

Sorry me again!!!!

I’m so sorry but Just a quick question? When I was on warfarin, my INR had to be between 3-4.5 depending if I had d-dimmers or Thrombosis, that’s when they...

I’m so sorry but Just a quick question? When I was on warfarin, my INR had to be...

Teanna

•7 years ago

9 Replies

Pain in muscles and joints etc for 8 years.

All over body pain , mostly shoulders also two sides of neck and tingling in upper arms and feet sometimes. Difficult to walk down stairs. Had all tests and...

All over body pain , mostly shoulders also two sides of neck and tingling in upp...

jacdaniels

•7 years ago

2 Replies

What is INR?

how is this determined? Pardon my ignorance, I'm new here.

phillygee

•7 years ago

9 Replies

Is it possible to have APS or Lupus with negative blood tests?

I have had multiple DVTs, multiple Pulmonary Embolisms and multiple TIAs and must be on anticoagulation for life but my APS blood tests are negative. I had two...

I have had multiple DVTs, multiple Pulmonary Embolisms and multiple TIAs and mus...

leakeadea

•7 years ago

36 Replies

Prof Bruce Appointment

Well had a very interesting meeting with Prof Bruce . Never had such care and attention such a lovely guy . Bloods taken by Prof Hay all came back good so no...

Well had a very interesting meeting with Prof Bruce . Never had such care and at...

amy1808

•7 years ago

8 Replies

Prof Bruce

Right guys first appointment with Prof Bruce tomorrow. I’m excited and hoping he will start me on treatment apart from warafrin. I am taking my diary so he can...

Right guys first appointment with Prof Bruce tomorrow. I’m excited and hoping he...

amy1808

•7 years ago

7 Replies

Cayenne pepper

Is it safe for us to take ? And if so does any body on here take it and in what form ? X

Is it safe for us to take ? And if so does any body on here take it and in what ...

amy1808

•7 years ago

8 Replies

APS and excessive bleeding/blood clots during menstruation

I have APS and my periods are so severe, that I will soak through a super plus tampon with a super plus pad at the same time in less than an hour. After the...

I have APS and my periods are so severe, that I will soak through a super plus t...

StyxAnnStones

•7 years ago

16 Replies

Sharp pain

Does anyone have sharp stabbing pain in their belly button area it's really driving me crazy,I'll be really greatfull for any advice.

Does anyone have sharp stabbing pain in their belly button area it's really driv...

Gilliansimba

•7 years ago

12 Replies

new APS research

https://www.researchgate.net/publication/320219275_The_effect_of_low_dose_aspirin_and_low_molecular_weight_heparin_enoxaparin_in_recurrent_pregnancy_loss_associ

https://www.researchgate.net/publication/320219275_The_effect_of_low_dose_aspiri...

charlieab

•7 years ago

7 Replies

Inr crashed

Went to st Thomas today for a venus blood test to compare it with my self test machine which was lucky as I normally test on Tuesdays . Inr was 2.5 and Venus...

Went to st Thomas today for a venus blood test to compare it with my self test ...

Tim_Thorpe

•7 years ago

8 Replies

Zenith a Hydroxy chloroquine

Hi everyone. Is anyone on here still having difficulty getting the brand Zentiva Hydroxy chloroquine. I am owing two months of the drug and Boots the pharmacy...

Hi everyone. Is anyone on here still having difficulty getting the brand Zentiva...

bernieembleton

•7 years ago

10 Replies

Serum C Reactive Protein Levels

Hi everyone. I am being tested for APS by my GP. I've just been called by them to make an appointment re an abnormal Serum C Reactive Protein Level. My level...

Hi everyone. I am being tested for APS by my GP. I've just been called by them t...

Aliking4

•7 years ago

3 Replies

Alternative medicine

Here in Canada using different methods for pain relief is getting more steam every year. I tried marijuana a year ago ,,(pill form cause I don't smoke) and...

Here in Canada using different methods for pain relief is getting more steam eve...

Salmonious

•7 years ago

7 Replies

Asking for a family colleague/Australia

Hi guys, I am asking a question for a change, who knows of anybody near Perth in Australia who could help with medical care. ie a specialist for Hughes...

Hi guys, I am asking a question for a change, who knows of anybody near Perth in...

MaryF

Administrator•7 years ago

1 Reply

Help needed re Diagnosis information

Hi everyone. My doctor is testing me for APS but said she could only do blood tests for anticardiolipin and lupus anticoagulant. She said she couldn't test for...

Hi everyone. My doctor is testing me for APS but said she could only do blood te...

Aliking4

•7 years ago

16 Replies

Specialist in APS Australia

Hi guys I was wondering if anyone in Sydney Australia is in this group and if so, could they recommend a good specialist for APS? I have had a few different...

Hi guys I was wondering if anyone in Sydney Australia is in this group and if s...

Sev132

•7 years ago

12 Replies

Good or bad app ??? 🤔

Hi guys Well just had my haematology app at Manchester royal . Had a lot of symptoms lately and felt pretty rubbish . Prof Hay said it's not the APS it's the...

Hi guys Well just had my haematology app at Manchester royal . Had a lot of sym...

amy1808

•7 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2017

Could Pelvic Congestion Syndrome be related to APS

SHINGLES and APS

Aps and blood pressure

itchy skin

Optic Nerve Atrophy ( Image Two of Three)

Optic Nerve Atrophy ( Image Three of Three)

Optic Nerve Atrophy : Image one of Three

not sure if my memory is shot or if its mostly depression

Sorry me again!!!!

Pain in muscles and joints etc for 8 years.

What is INR?

Is it possible to have APS or Lupus with negative blood tests?

Prof Bruce Appointment

Prof Bruce

Cayenne pepper

APS and excessive bleeding/blood clots during menstruation

Sharp pain

new APS research

Inr crashed

Zenith a Hydroxy chloroquine

Serum C Reactive Protein Levels

Alternative medicine

Asking for a family colleague/Australia

Help needed re Diagnosis information

Specialist in APS Australia

Good or bad app ??? 🤔

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