Right guys first appointment with Prof Bruce tomorrow. I’m excited and hoping he will start me on treatment apart from warafrin. I am taking my diary so he can see how I have been . All my blood results Prof Hay took last week will be there . Been feeling pretty rough for the past few weeks and I want to get better well better than I am , just to get through a day would be good .
Is there any advice anyone can give me on what to ask ?
Good luck with your appointment. What other treatment are you wanting just out of interest? Are you not on hydroxychloroquine already as well??x
No not on anything only Warafrin , my symptoms get quite bad , limb weakness , memory , heavy legs , breathless etc etc etc . When I saw Prof Hay last week he thought I should be on immunosuppressants . Just st have to wait and see what tomorrow brings !!!!!
I hope your appointment goes well and your able to receive the treatment that puts you on the road to a better quality of life, good luck. Jill
Plaquinil may help too
I hope all goes well for you tomorrow!
Wishing you well for tomm. Let us know how you get on. xx
Heparin Trial
