Sticky Blood-Hughes Syndrome Support
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Prof Bruce

Right guys first appointment with Prof Bruce tomorrow. I’m excited and hoping he will start me on treatment apart from warafrin. I am taking my diary so he can see how I have been . All my blood results Prof Hay took last week will be there . Been feeling pretty rough for the past few weeks and I want to get better well better than I am , just to get through a day would be good .

Is there any advice anyone can give me on what to ask ?

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Good luck with your appointment. What other treatment are you wanting just out of interest? Are you not on hydroxychloroquine already as well??x

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No not on anything only Warafrin , my symptoms get quite bad , limb weakness , memory , heavy legs , breathless etc etc etc . When I saw Prof Hay last week he thought I should be on immunosuppressants . Just st have to wait and see what tomorrow brings !!!!!

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Let us know how you get on x

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I hope your appointment goes well and your able to receive the treatment that puts you on the road to a better quality of life, good luck. Jill

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Plaquinil may help too

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I hope all goes well for you tomorrow!

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Wishing you well for tomm. Let us know how you get on. xx

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