Optic Nerve Atrophy ( Image Two of Three)

[KellyInTexas]

Please refer to Post one of one for explanation

[KellyInTexas Administrator]

A note to clarify: the pie chart ( norm. Distribution) should be totally green. Mine are completely red. Lowest 1 st percentile. Very severe problem- severe thinning. / Nerve death. Can never re - generate.

[MaryF Administrator]

Thanks for putting these on, what is the plan with your haematologist, Framgin Shots? MaryF

[KellyInTexas Administrator in reply to MaryF]

I’m on 16.5 mg warfarin / 17mg warfarin every other day. Finally I hit the magic dosage about three weeks to a month ago!!!!! Yay me!

If it dips, I inject with heparin.

When I kept clotting with warfarin alone, we switched to Heparin ( exoxaparin) exclusively in hopes to stabelize the INR. I felt horrible, had almost daily migraines, and blood wouldn’t flow forth from veins for draws. The Xa factor was in the upper most high of normal limits- and sure enough I clotted with a new DVT.

I was really not suited for it and I did not like having no control. ( or let’s face it, the illusion of some control of least...I couldn’t inject- couldn’t adjust... the way I coukd with warfarin.) at this point, a mute point. My non love affair with loveonox was only 6 week.

[Hughes-Comrade in reply to KellyInTexas]

KELLY, What is your approximate elevation where you live or spend most of your time?

[KellyInTexas Administrator in reply to Hughes-Comrade]

Kerrville, Texas- I think its around 1800 - 2000 ft. ( we are in the Texas hill country- rolling hills.) so not too high. Not a high altitude situation. Yes, I walk around clotting also. More to the story than just thinning the blood for some of us...

[Hughes-Comrade in reply to KellyInTexas]

Yep, just wondered if it was an altitude issue.

[Lure2]

Hi Kelly,

Hope you have an Ophthalmologist or an Eye-Doctor who really understands this. What will they do with this answer?

Can you se properly when writing and helping us here?

Kerstin

[KellyInTexas Administrator in reply to Lure2]

I don’t think the neuro- Opthomologist knows much, no.

I started seeing him before diagnosis. And now of course after.

He doesn’t know what to do.

Reading and writing is difficult- but then again- we all have our struggles!