Prof Bruce: Right guys first... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,352 members10,541 posts

Prof Bruce

amy1808 profile image
7 Replies

Right guys first appointment with Prof Bruce tomorrow. I’m excited and hoping he will start me on treatment apart from warafrin. I am taking my diary so he can see how I have been . All my blood results Prof Hay took last week will be there . Been feeling pretty rough for the past few weeks and I want to get better well better than I am , just to get through a day would be good .

Is there any advice anyone can give me on what to ask ?

Written by
amy1808 profile image
amy1808
To view profiles and participate in discussions please or .
7 Replies
Yllek profile image
Yllek

Good luck with your appointment. What other treatment are you wanting just out of interest? Are you not on hydroxychloroquine already as well??x

amy1808 profile image
amy1808 in reply to Yllek

No not on anything only Warafrin , my symptoms get quite bad , limb weakness , memory , heavy legs , breathless etc etc etc . When I saw Prof Hay last week he thought I should be on immunosuppressants . Just st have to wait and see what tomorrow brings !!!!!

Yllek profile image
Yllek in reply to amy1808

Let us know how you get on x

Jillymo profile image
Jillymo

I hope your appointment goes well and your able to receive the treatment that puts you on the road to a better quality of life, good luck. Jill

Wittycjt profile image
Wittycjt

Plaquinil may help too

lupus-support1 profile image
lupus-support1Administrator

I hope all goes well for you tomorrow!

HollyHeski profile image
HollyHeskiAdministrator

Wishing you well for tomm. Let us know how you get on. xx

You may also like...

Prof Bruce Appointment

with Prof Bruce . Never had such care and attention such a lovely guy . Bloods taken by Prof Hay...

Been to see Prof Khamashta...

shock- £830+!!!) and I'm to go back in 2 weeks for the results. I got myself a bit upset..silly...

Going to see the Prof on Tuesday strangely nervous

really know what he can do for me. I have warfarin and tried plaquenil in the past so he most...

GP who does not agree with Prof Hughes.

fatigue the biggest concern. The Prof wants a 2 week trial of heparin as plavix has not helped. GP...

London Bridge visit with Prof K

to visit my own g.p first to ask a couple of things. A huge weight as been lifted off me and that...