Maybe APS....maybe not

[HellyD]

Hi All,

I'm after a bit of advice please...? Apologies, as you must have been asked this so many times!

I've previously had a provoked DVT after an operation in 2009 (treated with Warfarin for 3 months). Then in January this year had a small PE (treated with Warfarin for 6 months) and told at my follow up appointment in May I would have to be on anti-coag treatment for life. I requested to go onto Clexane, as I wanted to try for a family. A week later I had another suspected PE. I say 'suspected' as I was going onto Clexane anyway and they didn't want to subject me to any more radiation via the tests just to prove I had one. Blood tests are all normal, apart from the lupus anti-coag, which was positive.

I've gone to see the hematologist today and she's repeating the lupus anti-coag test but cannot confirm APS. We discussed my medical history of 2 miscarriages, migraines, tiredness and clots. She said tests alone cannot confirm APS and you should look at the history...but still wouldn't confirm APS.

Any advice on what to do next would be really helpful, as I'm frustrated that no one can explain or confirm the cause of my PEs.

Thanks for reading my essay!

Helly

[HellyD]

Thank you so much for replying to me. On Clexane for the past 6 weeks, previously Warfarin since January. Not under a gyny yet, she is looking into that. I did try and get referred to a specialist via my GP but I didn't get very far. I live in Manchester, UK.

Any recommendations for tiredness as well...?

Thanks

Helly

[HellyD]

Thank you so much for that, you're very kind to reply so quickly. I'll contact my GP again.

[MaryF Administrator]

Hi, I agree with all the advice you have been given by my colleague, I hope things improve for you. MaryF