I was diagnosed with Lupus nearly 5 years ago. I was 48. Lupus SLE rheumatoid overlap. My ESR was 69 my neutrophils were 0.1. Was put on plaquenil and steroid and the methetrexate. But I was taken off them because my neutrophils had improved until methetrexate was introduced. I was also given co codomol, calcium + Vit D, Vit D. Now I have been told my platelets are clumping so I had more tests using citrate, ESR was down to 24 and I was told ESR signifies the disease is less active. But I feel so tired and to walk is so painful. My calf feels like it's going to explode and I find my self stood like a stork with one leg bent up until I feel it subside. But it returns as soon as I start walking again. My foot also goes numb. The outer peripheral of my foot and my toes go completely numb. I have had a lot of falls and I am frightened to go anywhere on my own in case! My memory is absolutely chronic and I suffer with terrible headaches (I don't suffer with headaches as a rule). I have now been diagnosed with thrombocytopenia and positive for Lupus anti coagulant. Neutrophils are never mentioned now so I presume they are normal. I was given aspirin but my stomach was in agony and I was vomiting blood. I wasn't given anything else. My bones are very sore to touch and joints are still painful but not as bad as they were. I seem to be developing more auto immune diseases but nothing is being done. I stopped all meds but 20mg a day steroid and I have now tapered myself off them. I just had blood tests repeated in citrate and EDSA. Is Lupus anti coagulant and sticky blood the same thing and if so do I now have hughes syndrome? Sorry it's so long I have shortened as much as I could! My brain is fried!
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