Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for May 2016

Good News and Some bad News, But Me I'm Optimistic Cuz it's Debbie Lol...

The Good news is that I'm covered by all the Fancy NYC Big Hospitals such as Sloan Kettering Cancer Centre where I forced my sis Nanny 24 to go & Mt. Siani,...

The Good news is that I'm covered by all the Fancy NYC Big Hospitals such as Slo...

Debbweb01

•8 years ago

8 Replies

APS Patients' Day

Thanks to all of you who managed to come to London yesterday. Hope it was an informative day. For those of you who couldn't attend, the HSF charity will be...

Thanks to all of you who managed to come to London yesterday. Hope it was an inf...

Hidden

•8 years ago

5 Replies

Update on my throat. Went to ENT Must c Throat Specialist ASAP

This is all weird to me & don't know much about this! I went to my ENT and she scoped me in her office, but couldn't see my Larynix or my vocal chords! This...

This is all weird to me & don't know much about this! I went to my ENT and she s...

Debbweb01

•8 years ago

7 Replies

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Any advice please

My husband has aps he had 2 strokes before we found out , hes been back at work for over a year , but very recently has been very tired and not himself , I am...

My husband has aps he had 2 strokes before we found out , hes been back at work ...

Iinca123

•8 years ago

10 Replies

Must see an ENT ASAP

Hi from across the pond! I've been having trouble swallowing for past month! I thought my allergies or Sjogrens? Or combination of both! Now it's to a point I...

Hi from across the pond! I've been having trouble swallowing for past month! I t...

Debbweb01

•8 years ago

11 Replies

SJOGRENS OR ALLEGIES PLEASE HELP

Good Morning across the pond! I've been suffering the past month with what I thought was Alergies! On news it says this is worst allergy season in years! It...

Good Morning across the pond! I've been suffering the past month with what I tho...

Debbweb01

•8 years ago

18 Replies

Heparin Injections Daily?

Further to previous posts (son in law's diagnosis of APS and Factor V Leiden ) his haematologist has now told him to arrange daily injections of Heparin, after...

Further to previous posts (son in law's diagnosis of APS and Factor V Leiden ) h...

teldee

•8 years ago

15 Replies

Raised immunoglobulins anyone?

Hello! I have APS (diagnosed as primary obstetric), hashimotos & coeliac disease, also fibromyalgia. I'm not currently under the care of a consultant for my...

Hello! I have APS (diagnosed as primary obstetric), hashimotos & coeliac disease...

Wooziesoozie

•8 years ago

9 Replies

Feeling normal

Does anyone on here have a normal day when they actually don't have any symptoms ? I know it's early days 2 months on Warafrin but it's really getting me down...

Does anyone on here have a normal day when they actually don't have any symptoms...

amy1808

•8 years ago

40 Replies

Is it normal ?

Hello everybody I have a question. Is it normal that I am missing full control on my toes of my left side. My last TIA was in my left side. Day by day I feel...

Hello everybody I have a question. Is it normal that I am missing full control o...

azahran

•8 years ago

17 Replies

Unexpected Pregnancy with APS

I had a positive pregnancy test this morning. Last year my OB/GYN told me that carrying to term could kill me. I'm at the doctor now, waiting. I've been...

I had a positive pregnancy test this morning. Last year my OB/GYN told me that c...

sillygoose08

•8 years ago

4 Replies

Travel Insurance Recommendations

Hi Can you please recommend where I can go for travel insurance? With a lot of people suffering with Lupus Anticoagulant, Antiphospholipid Syndrome I...

Hi Can you please recommend where I can go for travel insurance? With a lo...

Stannington-lad

•8 years ago

13 Replies

Platelet Rich Plasma or PRP Shots

All, would appreciate your advice: as a result of an ankle injury (a torn tendon) now in its 6th month my foot surgeon want to give me a PRP injection in the...

All, would appreciate your advice: as a result of an ankle injury (a torn tendon...

1818hst

•8 years ago

6 Replies

Need to make reservation for meeting May 18

Sorry I had the information on the meeting saved unfortunately it has disappeared. Can you please send it to me again. I am here in London & would like to...

Sorry I had the information on the meeting saved unfortunately it has disappeare...

designer16

•8 years ago

1 Reply

Bullous pemphigoid

Has anyone here developed Bullous pemphigoid? It is described as an autoimmune disease that produces painful, weepy blisters. I have it now. It is managed with...

Has anyone here developed Bullous pemphigoid? It is described as an autoimmune d...

DannyBoy1

•8 years ago

5 Replies

Reversal drug for those on Dabigatran.

IN an Australian first, the TGA has approved a reversal agent for a direct-acting oral anticoagulant. Idarucizumab (Praxbind) is a monoclonal antibody that...

IN an Australian first, the TGA has approved a reversal agent for a direct-actin...

Ozchick

•8 years ago

2 Replies

APS and thyroid problems???

Hi, has anyone had problems with thyroid? Xx

Christine7

•8 years ago

7 Replies

I am an embarrassed GP who has never heard of Hughes syndrome.

Hi My mother is in ICU post PE, Her Cardiolipin IgM is very high. She has had 3 miscarriages, severe migraines with aura and sister who also had a PE. I am a...

Hi My mother is in ICU post PE, Her Cardiolipin IgM is very high. She has had 3 ...

KimLewis

•8 years ago

14 Replies

Anyone seeing Dr Yousuf Karim?

Hi, I'm anticipating that I may need a referral to a specialist re possible lupus myositis and APS/Hughes Syndrome. The nearest specialist to my home in East...

Hi, I'm anticipating that I may need a referral to a specialist re possible lupu...

Spicer21

•8 years ago

11 Replies

Undiagnoised with some abnormal labs...

Hello All, I have a problem apparently no doctor so far can figure out. But here are my abnormal results elevated pt and attp, elevated crp. No factor...

Hello All, I have a problem apparently no doctor so far can figure out. But here...

unluckylissy

•8 years ago

12 Replies

Patients' Day - 18th. May

I am very keen to go to the Patients' Day next week and seek some help. I can get to St. Thomas' Hospital under my own steam but if; 1. Anyone who is...

I am very keen to go to the Patients' Day next week and seek some help. I can ge...

BillyBean

•8 years ago

2 Replies

Post thrombotic syndrome

I would like to hear from those who have post thrombotic syndrome. What does it feel like for you? And what have you found helps you feel better?

I would like to hear from those who have post thrombotic syndrome. What does it ...

Ylmom

•8 years ago

6 Replies

Hospital visit

Went to see professor hay at Manchester Royal yesterday . Told him about the episode I had two weeks ago and he wasn't happy that my symptoms had come back so...

Went to see professor hay at Manchester Royal yesterday . Told him about the epi...

amy1808

•8 years ago

3 Replies

Article in the Medical observer

http://www.medicalobserver.com.au/medical-news/noacs-to-doacs-direct-anticoagulants-are-beginning-to-hit-their-stride Hopefully you can open the link and read...

http://www.medicalobserver.com.au/medical-news/noacs-to-doacs-direct-anticoagula...

Ozchick

•8 years ago

7 Replies

Aps and now more auto immune disorders

Hi I was diagnosed with aps in 2013 after several miscarriages. I seem to be going from bad to worse. I constantly feel tired and have in the last year been...

Hi I was diagnosed with aps in 2013 after several miscarriages. I seem to be go...

sarahlou1801

•8 years ago

6 Replies

Tattoo and clexane

Hi, I'm considering getting a small tattoo, something which my daughter chooses for me and I'm choosing something for her, BUT I'm on 100mgs clexane for aps. ...

Hi, I'm considering getting a small tattoo, something which my daughter chooses ...

Ally7

•8 years ago

2 Replies

Autoimmune Disease and Inflammation

Hello all, I am new to this. I have only just been diagnosed with Hughes. I am 61, had a hip replacement and presented with tons of lung clots... I am slowly...

Hello all, I am new to this. I have only just been diagnosed with Hughes. I am 6...

Mikki54

•8 years ago

43 Replies

New lung issues.

I finally snapped and pressed my doctor to run some tests. You guys know I have been posting for ages on here about how I feel like a 91 year old man. My...

I finally snapped and pressed my doctor to run some tests. You guys know I have ...

Hidden

•8 years ago

11 Replies

Don't know what is wrong but feeling the heat worse than hot flushes!

I have just read nursewendy's post about experiencing the hot flushes and wondering if she has Hughes Syndrome. I am wondering too as for the past month I...

I have just read nursewendy's post about experiencing the hot flushes and wonder...

Iphoenix

•8 years ago

10 Replies

Hereditary

Hi me again , sorry . I was diagnosed with APS last September after several TIA'S. I'm on warfarin now and still getting to grips with it My 20 year old...

Hi me again , sorry . I was diagnosed with APS last September after several TIA...

amy1808

•8 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2016

Good News and Some bad News, But Me I'm Optimistic Cuz it's Debbie Lol...

APS Patients' Day

Update on my throat. Went to ENT Must c Throat Specialist ASAP

Any advice please

Must see an ENT ASAP

SJOGRENS OR ALLEGIES PLEASE HELP

Heparin Injections Daily?

Raised immunoglobulins anyone?

Feeling normal

Is it normal ?

Unexpected Pregnancy with APS

Travel Insurance Recommendations

Platelet Rich Plasma or PRP Shots

Need to make reservation for meeting May 18

Bullous pemphigoid

Reversal drug for those on Dabigatran.

APS and thyroid problems???

I am an embarrassed GP who has never heard of Hughes syndrome.

Anyone seeing Dr Yousuf Karim?

Undiagnoised with some abnormal labs...

Patients' Day - 18th. May

Post thrombotic syndrome

Hospital visit

Article in the Medical observer

Aps and now more auto immune disorders

Tattoo and clexane

Autoimmune Disease and Inflammation

New lung issues.

Don't know what is wrong but feeling the heat worse than hot flushes!

Hereditary

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