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Sticky Blood-Hughes Syndrome Support
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Travel Insurance Recommendations


Can you please recommend where I can go for travel insurance?

With a lot of people suffering with Lupus Anticoagulant, Antiphospholipid Syndrome I also have Vitamin B12 deficiency, Continuous Migraines, High Blood Pressure, Aggressive Sleep Apnea, Asthma.

I have also been tested and at the moment I have low Vitamin B (Folic) and Vitamin D which I am on tablets for the Vitamin D and awaiting for the B.

I have also been tested to see if I have Celiac Disease.

With most of these if not all, do you think that I can get insurance?

Can you please advise too if Celiac Disease is part of Antiphospholipid Syndrome? (If you have one Auto immune you have the others)

Thank you for taking time to read this.

14 Replies

Hi there I enclose advice about flying with anticoagulants plus also insurance list:  

1.   hughes-syndrome.org/self-he...

2.   hughes-syndrome.org/self-he...

Have a nice holiday.    MaryF


Thank you Mary F


Hi, Freedom insurance, 01223 446914. Cover me for APS, SS, CVA's Very reasonable, friendly, know their business. I have used for over 10 years now.


Some banks offer travel insurance to current account holders with monthly fee!

Please check with your bank, there are other additional benefits as well. I found this very good for me, I am with Barclays and I can carry on with this package till 80, I am 70 .


I am APS, LA+ with high blood pressure and previous TIA.  I had some degree of success for travel insurance using the standard comparison sites and also insureandgo and staysure (I think).

You will pay more, and it may be cheaper to just insure the trip that buy an annual policy (which is what I used to do, but they refused to renew cover when I got APS.

Depending on how you are booking the trip, you may also find the tour operator or travel agent offers a policy that will do - they tend to be expensive (if you are healthy...) so normally the advice is to decline them and shop around, but they also tend to have very few medical requirements or questions.  I have used Eurotunnel for recent trips and have booked their insurance, because I can pass the medical declaration (roughly, not travelling for medical treatment or against doctors advice or terminally ill) and it is a lot more hassle shopping around if you have lots of medical conditions.


Cover wise and all clear have been good for me in the past.


Saga are brilliant, they have insured me for 9 day cruise to Norway ans I have recently been diagnosed with Pulmonary Fibrosis probable cause Sjogren's. They don't ask a load of stupid questions either.

Hope this helps


Do try your bank, especially if they offer travel insurance in line with your current account. After trying a lot of companies who offered me travel insurance for about £200 for a 10 day trip to the States, my own Nationwide topped up my free travel insurance to cover my APLS for under £50! Worth calling them. Have a great holiday!


Dont botger with staysure, theyve turned me down twice, same conditions both times, but rejected for different reasons! Try talk to tim, they have a more caring side to them, youll pay more but it puts your mind at rest when travelling that if theres a problem thered be no hassle calling them. I wish you luck, and can only speak about the two companies i have tried and have experience of

Tae care and good luck


I would try some banks packaged accounts which you pay a monthly fee for. I have a Barclays account which I have travel insurance included. It's year round, multi trip and it's covers me and my children.

I have a nice long list of accepted conditions on it (you need to call and go through questions) antiphospholipid was one of those they covered me for.

I think it's not much money at all like £8.50 per month.

Hope you get it sorted and have a great holiday.


Are u from USA or UK???


I am UK


Hi All

Thank you for all your replies.

I have been looking and it is hard to make my mind up as to which one.

I will give it all some thought and I will look at Barclays first as I bank with them.


I also have a great work around for anyone who has a company which means no pre-existing conditions or age limits!!! PM me for details.


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