Good Morning across the pond! I've been suffering the past month with what I thought was Alergies! On news it says this is worst allergy season in years! It makes thing very difficult for me, as it's very rare, but I'm allergic to most allergy meds! I go into anaphylactic shock! Therefore I can't take any new med unless in docs office! Most docs won't treat me at all these days! Lol... They just yell at me and tell me how very complicated I am! Then they send me to Heck lol... I'm back on liquids, which I know is Sjogrens cuz that's what prompted me to go to Neurologist! He told me I had a virus running thru my body! Those virus's can kill u!!! Lol... I have had sore achey throat for a month and ear aches! My hearing is getting bad and I just thought cuz I live with 2 hearing impaired people who refuse to wear their Macho hearing aides I just scream! So I chalked it up to that! My throat is almost closed up and now as I talk I garble! It's very funny sounding so we crack up!!! My long lost friend Marion, born in Scotland, came to NY from Arizona! Well we picked up like we were in our 20's again! As we were talking, she also speaks a bit garbled, but didn't ask Why! She told me of her symptoms and I then asked if she has thyroid! Yes she did! I ask her to go home to be tested for APS! To my surprise she said she has that!!! Do Y'all think it's more common than we think??? I found 3 people with that! It cud be because no doctors around even recognize APS and it quite quickly becoming more common! Also another question is it a combination of Sjogrens and my allergies? Can this happen with Sjogrens? I've been DX'd with it and there are days where I start sweating cuz I think my throat is half closed and I'm not getting much air in! If it does close I'll just go to ER/Emergency Room! I know I poke fun of myself, but with this disease if u don't laugh, you'll cry all day everyday!!! I'm quite the character and very misunderstood cuz I laugh and keep on trucking! I only complain on here!!! Sorry guys, but you're my only outlet! I will receive my new leg on Tuesday, after a threat to my insurance company that they were breaking the law by not giving it to me and that I knew someone in the Media, gave them the nam, that I was going to sue them if I fell with old leg cuz was wobbly cuz it was too big! I told them this on Wednesday and by Friday I was approved! I know some of you may think I'm argumentative, but I fight everyday for 3 hours every morning on the phone! Fighting for my rights and what legally I'm entitled to! I'M SO DARN SICK OF FIGHTING THAT I HAD TO GIVE UP FOR A BIT AND CANCELLED ALL DOCS APPOINTMENTS WITH ANYTHING DUE TO APS! I know I was told by Famous city doc to go on Plaquinil! But there's no doc I can find to agree with him! I won't go bak to him cuz he tends to disagree with Dr. Hughes, My Hero & nobody in my book shall ever disputed his word! I'm only 2.17 with my INR after 8 mos of treatment! I think Admin. Dave went on Plaquinil/ Hydrochloroquinine instead of Warfarin! I told my Hemotologist I felt better wen my INR higher and my doc finally said ok I'm going to let u be higher! Then this past week, first Tim, he put his staff on phone and said I was good and keep the warrafin as he said! Well I didn't! I took an extra pull one day cuz I cut myself and on all these hi doses of warfarin it stopped bleeding in 2 seconds lol... Omg I may as well just not take it if my levels are so normal!!! Just call me Norma!!! I'm not making fun of this disease, so please don't take what I say as this disease is horrific for us, but if I don't make fun of myself and continue to fight on phone 3 hours every morning, I just become a lonely and bitter old lady!!! LMAO... I've cancelled new Rheumy this week cuz I couldn't handle anything else! I can't keep fighting without it turning me into an OGRE!!! Therefore I needed a much needed break! I'm so sorry if I've offended anyone with my jokes, but it's my defense mechanism for NOT TURNING INTO AN ARGUMENTATIVE OGRE!!! Lol... If anyone out there has Sjogrens and or Allergies please respond! I have no idea which DICTOR to go to Allergist, or Ear Nose and throat doc who can and maybe will put me on Plaquinil for the horrible SJOGRENS I have!!! I'm just fed up all around and about to shut down completely and try HOLISTIC MEDICINE! Stop all the rat poisoning in my body! My sister refuses to go on Plavix even! Aspirin also bothers her tummy, but she as stubborn as me refuses any other medicines in her body! So I'm up the creek without a paddle at this moment! Thanks in advance for any sound advice! GODSPEED HIS LOVE AND CARE TO Y'ALL! Hugs from across the pond!!! Lol... I just love saying across the pond!!!
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