Sticky Blood-Hughes Syndrome Support
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APS and ear problems

Hi, I was diagnosed with APS about 18 months ago after a venous sinus thrombosis. Since this I have been told I have sjogrens although I tested negative I have very dry mouth and eyes which is easily treated with drops. About a week ago I started having problems with my ear. This feels like trapped water but instead of being deaf I have ultra sensitive hearing. All searches lead to meniers disease but this has lasted a week and not cleared up in between. I haven't been sick I'm in no pain and my balance is ok. My head feels a bit fuzzy at times. Any ideas would be good. Going to see my GP next week. 

6 Replies

Hi Christine

Ear problems are common in APS.  I saw, at Prof Hughes' recommendation, Peter Savundra at The Portland Hospital in London.  Peter is a Consultant Audiovestibular Physician.  A lovely man, he as a good knowledge of APS related ear problems.

I don't know if you can see him on the NHS but it was very well worth paying to see him, in my case.



Thanks, I do have insurance so might ask my GP for referral and see if I can get an appointment. 


HI there, I am going to let Dave answer this one, as he has very very good advice on ears.    MaryF


I do indeed Mary.  My advice on ears is, yes you need them. lol. :)

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Seriously though, Peter Savundra is the best in the business.  He is one of only 10 of this type of consultant in the country and he has worked on APS with Prof H.


Great.  He's a fantastic guy, his clinics always run late because he spends so much time with each patient. 


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