Dermatitis: My daughter has dermatitis... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Dermatitis

heli13 profile image
9 Replies

My daughter has dermatitis on her hands and has been perscribed Eumovate Cream but when she puts it on, it makes her hands more  itchy and painful. Has anyone got any ideas what else she should try? Thanks

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heli13 profile image
heli13
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9 Replies
MaryF profile image
MaryFAdministrator

Hi did you mean to ask this question on the Hughes Syndrome Foundation forum?  Sorry to ask but do you have a diagnosis of this?  Or your daughter?    MaryF

heli13 profile image
heli13 in reply to MaryF

I didnt realise I was on a particular forum! Sorry. Not sure where to write a post? x

MaryF profile image
MaryFAdministrator in reply to heli13

I think there is a technical glitch going on at the moment, probably not your fault.   MaryF

ps you could try this one on HU:  British Skin Foundation:    healthunlocked.com/britishs...

Manofmendip profile image
Manofmendip

Hello.

May I ask you if you or your daughter have a diagnosis of APS/Hughes Syndrome?

This is a forum for patients suffering from APS/Hughes Syndrome and it is not a general medical forum.  If you and your daughter do not a a diagnosis of this disease then this is the wrong forum for you.

Dave

Clotia profile image
Clotia

Yes! Calmiderm by  Tilmand - order through Farmalne. It's the best stuff I've ever found. Completely takes the heat out of it and heat completely gone by following day. Then I use Ctraben to moisturise.

I find that since I have an APS + "unspecified mixed connective tissue disorder"...my immune responses are unpredictable...ie skin rashes..etc.  MD says Autoimmune Disorders are systemic....if we have one (ie APS) likelihood of suffering from another autoimmune disorder is high)  I use Calamine lotion for rashed..old fashioned not "Caladryl"

jetjetjet profile image
jetjetjet

 I have  sores that pop up out of no where--Hands, back  , legs . I have a script for a cream  { betamethasone Dipropionate  usp ,0.05 % it is a steroid  so i can't use it more than 14 days in concession . I will put it on and on my hands use surgical gloves  and leave them on for 4 or 5 hours  and two days of this most always will take care of it  and then use a  non petroleum , fragrant free cream  like Aveno  or a cream they gave me in the  hospital. -- The one sore on my back  beside my spine i just had an Ultrasound done on it  and it i think { haven't gotten the paperwork from Dc. on it yet } nurse said it is a fatty Sarcoma it is swollen and hurts some time  . But she said unless it continues to get larger and or goes to a constant pain  they won't touch it . I will let you know what the paperwork say's when I get it if you would like .

      

loppylou68 profile image
loppylou68

Been prescribed the same cream as hands and ankle have come up with painfull dry sore skin and got worse over last year 

Cetraban bath as well as cream or oilatum can also be used in water 

Coconut oil and bicarbonate of soda is something new I'm trying lol

When I was a child I had eczema until my late 20's it seems to of come back with avengance since diagnosed with APS 

Stress may be a trigger?! go figure....

Good 🍀 luck 

fanbrits profile image
fanbrits

I think if it's about a kid u bette ask ur doctor. my daughter burnwed her hands like that. still cant forgive myself for self medication

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