My usual reply, is of course, how is your vitamin D? Iron and B12? and how is your Thyroid? This is all only part of the illness I know, but important nevertheless. MaryF
I have bloods regularly and I'm on ferritin and vitamin d . Thyroid all ok even checked ft3 and ft4. Makes it hard to work and have a normal life sometimes
Good for you, for being so thorough, I hope you feel better soon, my daughter took a good 5 - 6 months to feel better on Plaquenil, not a drug I can tolerate myself. Keep well. MaryF
Have you had an ANA test ran to see if maybe other autoimmunes going on? Also a rheumatoid factor. I had both done when complaints about aches, pains and unbearable fatigue. All came back negative thank goodness. I did not see you mention this so this might be another answer. Mine was low B12 and severe deficiency of D. After 4 weeks I feel a lot better but still have fatigue. I will live with fatigue as long as not tear jerking aches and pains.
Hi! Could you, by any chance, be (somewhat) hypermobile? I get those pains too. As a child my GP once told me there was abnormal flexibility in my knees. During pregnancy and a year after I had pelvic instability. When I was in hospital after I had my child one of the doctors coincidently found out I was hypermobile, but I never thought about it since. Lately (I'm now nearly 40) I have pelvic/hip pains again (my physiotherapist has had to straighten my pelvis a couple of times now) and she too told me I'm hypermobile (so the joints between my muscles and bones are too soft). This means the muscles have to work extra hard and I'm less aware of how I move and hold my body (which increases the chances of getting hurt during normal movements), so I have to make myself aware (for instance not standing with my knees 'locked') and I'm doing a lot of exercises now I got from my physiotherapist to strengthen the hips/back/upper legs. Hope the pain gets better soon. Might be worth finding out if this could apply to you.
I have pain in arms legs and back and it's due muscle spasms- Osteo things that can be directly related and atributed to the APS. I go to therapy {dry needles } i end up going back about every 3 months and I also get back shots every two months . but when the times between the two don't go in succession then i am in trouble . I am on two muscle relaxers and 2 pain killers and and another general med for both . AS my problems with the APS gets worse than so do the other problems - started exercising again in March after a year off due to the foot flesh eating problem i had.{ of which they never did identify after all the tests and specialists } I think the gym routine is getting more intense so I am working on the exercising end of trying to help myself with this issue .
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.