Electric shock update.

[JoJo0405]

Hi guys,

Just a quick update on my electric shock I posted a few weeks ago.

The blood tests came back negative for Vitamin B12 deficiency and my GP doesn't know what's wrong with me so she's refered my back to my neurologist.

This brings me to my next question, how do I let my consultant know about what I think my symptoms point to?

As many of you know, I have APS/Hughes Syndrome but many new symptoms have been arising over the past 4/5 years which point strongly to Lupus and Sjogrens syndrome.

How should I approach this with my consultant?

Any help would be greatly received.

Jo xx

[Hidden]

Hi Jojo,

Where is the electric shock sensation?

Before I was diagnosed I was having electric shocks when I moved my neck in a downward position. The shock went right down my body.

I also had pain if there were any vibrations around like when sitting or standing on a wooden floor and a piano was being played the vibrations could be felt through my feet right up my body.

Diagnoses of that symptom was L'hermittes Syndrome.

I'm not saying this is what you do or might have however it's worth looking into.

Xx

[JoJo0405 in reply to Hidden]

The shocks are mainly in my right arm but getting pains everywhere. I've had on going joint pains for yrs but because there weren't any other symptoms at the time the Dr's dismissed it. I now have a long list of symptoms that don't belong with Hughes Syndrome, (about 9) which have accumulated over about 6 yrs, individually they don't mean much but collectively they tell a different story.

APsnotFAB, I've been researching for a long time now and my new symptoms fall into Lupus and/or Sjogrens. I will take your advice and print out some to show my Dr.

Thanks for your help guys.

xx