plaquenil : any one having difficulty... - Hughes Syndrome A...

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plaquenil

packerfan profile image
23 Replies

any one having difficulty finding or getting plaquenil or hydroxychlor (generic) to treat your dizziness from aps. very difficult to find here in the US cost was about 50.00 dollars now well over 600.00 dollars

anyone know of a substitute i cannot afford this medicine and have stopped taking it.

alleged shortage of both regular and generic

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packerfan profile image
packerfan
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23 Replies
jetjetjet profile image
jetjetjet

where in the US do you live ??

packerfan profile image
packerfan in reply to jetjetjet

Milwaukee Wisconsin several articles on the internet about shortages

packerfan profile image
packerfan in reply to jetjetjet

Milwaukee Wisconsin check articles on internet cut down on amount i am taking from two to one

Irecently refilled Hydroxychloroquine....CVS/ New York State...

neither my Rheumatologist nor my Pharmacist has mentioned shortages

packerfan profile image
packerfan in reply to

articles of shortages on internet

packerfan profile image
packerfan in reply to

cvs is the pharmacy that told me of the shortage

mylafont profile image
mylafont

I get mine through a mail order pharmacy thru my health insurance. I haven't had issues (yet) with getting it.

jetjetjet profile image
jetjetjet

I never have had any trouble --Hydroxy sodium is the actual drug -- Plaquenil is a brand name so maybe there { Plaquenil } is the the shortage ???

packerfan profile image
packerfan in reply to jetjetjet

I am taking the generic version something must be up my wife found a article about the shortage and cvs wants me to pay over 600 dollars just going to stop taking it

in reply to jetjetjet

generic name Hydroxychloroquine

AnnNY profile image
AnnNY

Insurance definitely wants you to get the generic. That's what I take. Maybe that's why I'm not doing as well with it as I did with the brand name drug years ago.

packerfan profile image
packerfan

i have the generic version i think i can manage without it

Christopher_O profile image
Christopher_O

A side effect of Plaquenil is dizziness. In my case, so severe that I'd faint.

No longer have dizzy spells now that I no longer take it.

My doctor wants me back on it. I told her flat out, "no."

Maybe with being unable to afford it and no longer on it. Your dizziness might just go away.

Rosemary76210 profile image
Rosemary76210

Bulletin published by American Society of Health-System Pharmacists gives info at ashp.org/menu/DrugShortages...

Rosemary76210 profile image
Rosemary76210

The above link is not working. go to ashp.org and look under drug shortages.

momtomany profile image
momtomany

We're close and I just got my refill Monday from Walgreens. Mutt insurance paid for all but $8 of the generic. Have you tried a partial refill?

packerfan profile image
packerfan in reply to momtomany

I have to use cvs they supply the generic version to me I always received a two month supply and it only cost 60 dollars I just told them not to send anymore. I will check with my hematologist if I can use something else or just stop the generic brand all together

MY APOLOGIES.....spoke to CVS and researched online...you are correct....I hope

the manufacturers figure this out.....I have been doing great for 5 years....don't want

to discontinue Hydroxychloroquine nor do I want to be prescribed another

immunesuppressant.....hoping my prescription plan considers paying for Plaquenil

if nothing else is available

packerfan profile image
packerfan in reply to

supplies are adequate i am told and should be available to all there was a shortage but things are better .

Lari profile image
Lari

A major supplier of generic plaquinil was a pharmacy in India that was found to have health code violations. It is currently not making it, hence the difficulty in getting it. It is easier to get it through the local market rather than through the mail order pharmacy. I ended up getting mine through CVS

packerfan profile image
packerfan in reply to Lari

thanks for the info i will forward it to my friends in the DEA. someone at a mail order pharmacy was trying to sell it at hugely inflated prices.

Lari profile image
Lari in reply to packerfan

I would assume they are already aware.

Katrinam profile image
Katrinam

Hi, I am also on plaquenil but I don't find it helps with my dizziness at all. I take a drug called serc it's for vertigo and I find it's works really well.

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