Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for February 2015

Stroke

Hi Everyone Ive just got home after a week in hospital following a stroke secondary to hughes syndrome. Im still feeling very poorly and its left me walking...

Hi Everyone Ive just got home after a week in hospital following a stroke second...

margaretjo

•9 years ago

9 Replies

Self testing

Morning All, If I may raise the thorny issue of self testing and prescriptions again.... My GP who is very understanding has agreed to and is in talks with...

Morning All, If I may raise the thorny issue of self testing and prescriptions ...

lloydyuk

•9 years ago

10 Replies

hi all

finally after nearly 4 years of fighting 2 be steralised I had my op last Wednesday........feel absolutely fantastic......I was all done in half hour n no...

finally after nearly 4 years of fighting 2 be steralised I had my op last Wednes...

rach1081985

•9 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Still swelling

About a year and a half ago i had a blood clot in my leg. I had surgery to have it removed and was given warfarin. Then six months after that i had another and...

About a year and a half ago i had a blood clot in my leg. I had surgery to have ...

eliceivy

•9 years ago

5 Replies

New user

I'm fifteen and was diagnosed with CAPS when I was 14

Hunterlogan

•9 years ago

5 Replies

Is IGM of 23 & neuro symptoms enough for diagnosis/treatment?

Hi all, Currently stuck in diagnosis limbo land for the past 3 months, wondering if it might be Hughes. Do you think my results below are enough for a Hughes...

Hi all, Currently stuck in diagnosis limbo land for the past 3 months, wonderin...

nadias1987

•9 years ago

9 Replies

Newbie

Had a diagnosis of Hughes syndrome last week warfarin is the way forward. any one know the best place I can get a medical bracelet or similar from

Had a diagnosis of Hughes syndrome last week warfarin is the way forward. any on...

Magoowood

•9 years ago

11 Replies

APS, AS Consultants

Can anyone recommend or point me to the leading Consultant in these fields? for the South West Wales

Can anyone recommend or point me to the leading Consultant in these fields? for ...

LesJames

•9 years ago

4 Replies

More information about the accuracy of Anti Beta 2 Glycoprotein antibodies and their role in the diagnosis APS.

Here is another study that shows that Anti B2GP1 antibodies are a more specific and reliable test for diagnosing Hughes Syndrome/APS. It is a short read but it...

Here is another study that shows that Anti B2GP1 antibodies are a more specific ...

Hidden

•9 years ago

5 Replies

Saw doctor today. All test were clear which is great but he also said I had a negative blood test for ApS.

He looked at my notes and i had a negative test before my son was born but I was still given asprin and fragmin. He repeated the test and will do again in 3...

He looked at my notes and i had a negative test before my son was born but I was...

Hidden

•9 years ago

8 Replies

Can you help take part in a clinical trial?

Alexion Pharmaceuticals are investigating a possible new treatment for APS. They are looking for people aged between 18-75 who have tested postive for...

Alexion Pharmaceuticals are investigating a possible new treatment for APS. Th...

Hidden

•9 years ago

13 Replies

Good Early Surgery Outcome but frUstrating Warfarin management

Sorry it's taken a couple weeks to write an update on my one level spinal fusion but here it goes: my GP organized my presurgery bridging using LOVENOX. Felt...

Sorry it's taken a couple weeks to write an update on my one level spinal fusion...

Godstrong

•9 years ago

5 Replies

A question please!

Hello everyone I hope you are all as well as can be and most importantly have a positive outlook for the future, if you don't but want one then get in touch,...

Hello everyone I hope you are all as well as can be and most importantly have a ...

Chef_Spartacus

•9 years ago

5 Replies

A round up of articles from the UK newspapers

1. Comment from Lyn Mynott from Thyroid UK on this one off the Daily Mail:...

MaryF

Administrator•9 years ago

2 Replies

Re; Newbie !

Hi everyone and hope you're all keeping well. I'm not sure if updating this thread is how to do things but here goes! I went for my colonoscopy last week after...

Hi everyone and hope you're all keeping well. I'm not sure if updating this thre...

andyb1969

•9 years ago

1 Reply

Some of your expert advice please!

Hi there, Just looking to the experts (you guys) for some info about Hughes. I'm twenty-one, a student and live in London. Over the last three years I've...

Hi there, Just looking to the experts (you guys) for some info about Hughes. I...

pikamonster

•9 years ago

7 Replies

Confused

When I was pregnant with my second child I was admitted to hospital twice towards the end of my pregnancy with chest pain. I was found to have a ruptured...

When I was pregnant with my second child I was admitted to hospital twice toward...

mcjm

•9 years ago

14 Replies

APS

Hi been to see my rheumatologist to day feel as it was a wast of time she could have told me the think over the phone she asked me when I had my stroke was it...

Hi been to see my rheumatologist to day feel as it was a wast of time she could ...

Lesley61

•9 years ago

36 Replies

The Seronegative Hughes Syndrome/APS book idea is back on

A long while back, many of you will remember that I decided to pull a book together regarding the awful dilemma surrounding patients who get caught in 'limbo'...

A long while back, many of you will remember that I decided to pull a book toget...

MaryF

Administrator•9 years ago

41 Replies

Strongly positive

I am new here and have a few questions. It seems most people on here are receiving treatment of some sort. After numerous miscarriages I tested strongly...

I am new here and have a few questions. It seems most people on here are receivi...

Meddlingwife

•9 years ago

7 Replies

My turn to ask a question

Has anybody alongside the fatigue and migraines developed any cramp in their arms. My daughter has had almost a daily migraine since November and now has...

Has anybody alongside the fatigue and migraines developed any cramp in their arm...

MaryF

Administrator•9 years ago

26 Replies

A Big Thank to Kerstin Lure2

I would like to thank Kerstin from the bottom of my heart, Kerstin has worked as a part time Administator for us on this forum for a number of months. This...

I would like to thank Kerstin from the bottom of my heart, Kerstin has worked a...

MaryF

Administrator•9 years ago

41 Replies

Professor Karim Meeran or Professor S. L. Chew? (Endocrinology)

Hi Could please, anyone PM me re. if you saw one of them and if your experience was positive and if positive, in what way? I would be most grateful if you...

Hi Could please, anyone PM me re. if you saw one of them and if your experience...

Hidden

•9 years ago

3 Replies

Hereditary?

There is a recent thread on a Facebook support group where members were talking about whether or not their children had been blood-screened for this awful...

There is a recent thread on a Facebook support group where members were talking ...

minnime63

•9 years ago

14 Replies

Blood clots in my teeth one side only

Hi, I am going asked a question is normally to bleed your teeth, only one side the right side. Every morning for the past 3-4 days i have blood in my mouth,...

Hi, I am going asked a question is normally to bleed your teeth, only one side t...

msperling

•9 years ago

10 Replies

Referral Done!

Hello everyone, Thank you to all of you for giving me great advice and support, because of you I now have a referral to a hematologist and that's in Truro,...

Hello everyone, Thank you to all of you for giving me great advice and support, ...

Chef_Spartacus

•9 years ago

4 Replies

APS and bloody nose and blood clots into throat

I am on Warfarin For APS. Just recently, past 4 or 5 days, I have been getting many nose bleeds..Not bad but annoying. When I sleep I have been awakened by me...

I am on Warfarin For APS. Just recently, past 4 or 5 days, I have been getting m...

dar58

•9 years ago

9 Replies

New INR machine...

Hello everyone, I was able to have my own INR machine. I report directly to the OHSU in Portland Oregon. My INR's have not been stabilize yet I am eating the...

Hello everyone, I was able to have my own INR machine. I report directly to the...

beccafullcircle

•9 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2015

Stroke

Self testing

hi all

Still swelling

New user

Is IGM of 23 & neuro symptoms enough for diagnosis/treatment?

Newbie

APS, AS Consultants

More information about the accuracy of Anti Beta 2 Glycoprotein antibodies and their role in the diagnosis APS.

Saw doctor today. All test were clear which is great but he also said I had a negative blood test for ApS.

Can you help take part in a clinical trial?

Good Early Surgery Outcome but frUstrating Warfarin management

A question please!

A round up of articles from the UK newspapers

Re; Newbie !

Some of your expert advice please!

Confused

APS

The Seronegative Hughes Syndrome/APS book idea is back on

Strongly positive

My turn to ask a question

A Big Thank to Kerstin Lure2

Professor Karim Meeran or Professor S. L. Chew? (Endocrinology)

Hereditary?

Blood clots in my teeth one side only

Referral Done!

APS and bloody nose and blood clots into throat

New INR machine...

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive