Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for July 2014

Update... ):

Hello all, I just wanted to thank everyone that has wished us luck with this pregnancy and for all the kind words that have been exchanged. However we received...

Hello all, I just wanted to thank everyone that has wished us luck with this pre...

kirstyleigh

•10 years ago

14 Replies

More conditions to add to the list

Following my rheumatologist appointment yesterday, at Manchester Royal Infirmary, the dr gave me the results of several tests done over the last 3 months. A...

Following my rheumatologist appointment yesterday, at Manchester Royal Infirmar...

JanBad

•10 years ago

3 Replies

Appointments with Prof Hughes and Khashmata

Good afternoon everyone. I have appointments with both profs. My first is in Aug. Its such a relief that I will get answers from people who specialize in APS...

Good afternoon everyone. I have appointments with both profs. My first is in Aug...

crista1

•10 years ago

24 Replies

Want to take advantage of all our features? Just log in!

Whating for test to be done

Hi all Second time to post comments on site sill waiting to be tested .I have to come off my worthren tomorrow for 10 weeks to let blood go back to normal...

Hi all Second time to post comments on site sill waiting to be tested .I have t...

buns

•10 years ago

9 Replies

Swollen ankle

Hi everyone. I have a question if that is alright please. I went to bed with a swollen ankle last night and awoke with it the same. Felt very tight and hot and...

Hi everyone. I have a question if that is alright please. I went to bed with a s...

crista1

•10 years ago

18 Replies

INTERNET SAFETY/spammers

Hi, as with any forum, at times a 'spammer' will arrive, and attempt to mail people privately. I had one myself this morning, actually not via our forum but...

Hi, as with any forum, at times a 'spammer' will arrive, and attempt to mail peo...

MaryF

Administrator•10 years ago

1 Reply

Traveling

Hello everyone, I am trying to get use of this new social network. I recently went on vacation to Disney. My legs and back were very painful. My son in law...

Hello everyone, I am trying to get use of this new social network. I recently we...

Lexi_Img

•10 years ago

8 Replies

Self Referral to see Prof Hughes

Hi. I am going to self refer to see Prof Hughes, but would like to know if : - 1. Can I ask for all records, notes, lab results and scan from MRI on brain and...

Hi. I am going to self refer to see Prof Hughes, but would like to know if : - 1...

crista1

•10 years ago

11 Replies

Can you self refer to see prof.hughes?

Hi everyone. Is it possible to self refer to see the prof? Or does your GP need to do it? Any idea on costs or waiting times. I've already had mri's,...

Hi everyone. Is it possible to self refer to see the prof? Or does your GP need...

Tinythepanda

•10 years ago

7 Replies

Fish oils.

I have found that at times I take oily fish my inr can massively increase. This made me wonder. Was anyone taking large doses of fish oils prior to a Hughes...

I have found that at times I take oily fish my inr can massively increase. This...

overnighthearingloss

•10 years ago

35 Replies

Warfarin vs Fragmin

Quick question. For those of you who have had experience with both Warfarin and Fragmin, which would you say helped you the most?

Quick question. For those of you who have had experience with both Warfarin an...

crichardson

•10 years ago

8 Replies

Self-checking your INR

I have had it triple confirmed that I have APS with some other autoimmune condition (I believe SLE, and it fits). Spoke with my thrombotologist two weeks ago...

I have had it triple confirmed that I have APS with some other autoimmune condit...

Bonnie39

•10 years ago

13 Replies

INR and APS

Hi, I am wondering: can one have APS with INR of 1.0? I assume there are other conditions that can cause an INR greater than 1.0, so increased INR does not...

Hi, I am wondering: can one have APS with INR of 1.0? I assume there are oth...

jenss

•10 years ago

14 Replies

Am I imagining clexane's rapid effect?

My INR was just 2.1 today (target of 3 - I need to be at least 3 to feel well). I felt awful - slurring, calf felt achey again and I just couldn't think...

My INR was just 2.1 today (target of 3 - I need to be at least 3 to feel well). ...

stillwaiting

•10 years ago

4 Replies

TIA (mini stroke)

I woke up a week Tuesday ago and lost my sight in my left eye... When talking a while later to my partner he asked why I was sluring my words and wasn't making...

I woke up a week Tuesday ago and lost my sight in my left eye... When talking a ...

Jomack

•10 years ago

24 Replies

circulation Boosters

Hi I suffer with terrible cramps and leg issues after DVT's and nerve damage after 3 back ops, and I was looking at circulation boosters that you place your...

Hi I suffer with terrible cramps and leg issues after DVT's and nerve damage af...

Molly100

•10 years ago

14 Replies

What might this be?

Have been to GP yesterday and walk in center today, but just not sure that what I have been told is correct, in fact with the walk in I know for certain that...

Have been to GP yesterday and walk in center today, but just not sure that what ...

donnabrain

•10 years ago

17 Replies

Update....

Hello all, Just wanted to give you all a quick update, I had my first ultrasound scan today, I got to see my little bean, and he/she's beating heart. I am 6...

Hello all, Just wanted to give you all a quick update, I had my first ultrasound...

kirstyleigh

•10 years ago

17 Replies

What does it mean if you have an elevated ESN blood test result?

My son went to the allergist and they did a blood panel. They called today and told me he has an elevated ESN level but wouldn't tell me over the phone what...

My son went to the allergist and they did a blood panel. They called today and t...

therisamaries

•10 years ago

5 Replies

An amazing and inspirational story taken off the HSF Facebook charity page:

http://www.thenorthernecho.co.uk/news/local/southdurham/11322455.New_heights/ New heights 6:35am Saturday 5th July 2014 in South Durham News The Northern...

http://www.thenorthernecho.co.uk/news/local/southdurham/11322455.New_heights/ N...

MaryF

Administrator•10 years ago

3 Replies

Changes with HU

Hi guys, hang on to your hats... we will be all moved over to the new form of the forum/site today and tomorrow, as administrators we have no choice with...

Hi guys, hang on to your hats... we will be all moved over to the new form of th...

MaryF

Administrator•10 years ago

4 Replies

Seeing my rheumy today who may prescribe Plaquinel. What to expect?

Hi all, Like so many of us I've had a long journey to dx. 9 years and many consultants to be precise! I am seeing the rheumy today and finally she said she...

Hi all, Like so many of us I've had a long journey to dx. 9 years and many cons...

Bonnie39

•10 years ago

14 Replies

Is arthralgia curable?

I am on medication for arthralgia which includes steroids & many other medicines. . But looks like it is taking long time. .I feel depressed & wonder whether...

I am on medication for arthralgia which includes steroids & many other medicine...

pilloo

•10 years ago

2 Replies

Newly diagnosed with Lupus Anticoag - can I still go diving (Have PADI diving qualification and only go to 18 metres)?

I am aware I am going to have trouble getting travel insurance anyway - but if I can I wanted to know whether I can or not?

I am aware I am going to have trouble getting travel insurance anyway - but if I...

chrissybell

•10 years ago

16 Replies

Article pinched from The National Migraine Centre/Facbook page

http://www.independent.co.uk/life-style/health-and-families/a-migraine-is-so-much-more-than-a-bad-headache-hope-for-sufferers-as-cures-are-researched-9589371.ht

http://www.independent.co.uk/life-style/health-and-families/a-migraine-is-so-muc...

MaryF

Administrator•10 years ago

2 Replies

Is your blood thin if your INR is 2.0 or below

heart56

•10 years ago

7 Replies

Sleep disturbance resulting in painful headaches

I was diagnosed with Hughes Syndrome 12 months ago. Since taking Warfain my migraines have lessened and are less severe. In the last couple of months I've been...

I was diagnosed with Hughes Syndrome 12 months ago. Since taking Warfain my migr...

AvsG

•10 years ago

47 Replies

Our baby girl is here!

After a failed induction our baby girl was born today by C section weighing 6 lbs 8 oz at 38 weeks. Our miracle after twin slillbirth and 2 miscarriages. Here...

After a failed induction our baby girl was born today by C section weighing 6 lb...

Hopingforababy

•10 years ago

47 Replies

Brain and joint struggles

I am new to this forum, am seeking advise and any common ground I may be blessed enough to receive. I have APS and had a PE, DVT, clots on brain, joint...

I am new to this forum, am seeking advise and any common ground I may be blessed...

beccafullcircle

•10 years ago

33 Replies

How many of us have been bouncing around between specialists to get a firm diagnosis?

Long story short! In my journey to diagnosis over the last 2 years I think I have been seen by every department at my hospital! A year ago I was dx with APS...

Long story short! In my journey to diagnosis over the last 2 years I think I ha...

Bonnie39

•10 years ago

15 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2014

Update... ):

More conditions to add to the list

Appointments with Prof Hughes and Khashmata

Whating for test to be done

Swollen ankle

INTERNET SAFETY/spammers

Traveling

Self Referral to see Prof Hughes

Can you self refer to see prof.hughes?

Fish oils.

Warfarin vs Fragmin

Self-checking your INR

INR and APS

Am I imagining clexane's rapid effect?

TIA (mini stroke)

circulation Boosters

What might this be?

Update....

What does it mean if you have an elevated ESN blood test result?

An amazing and inspirational story taken off the HSF Facebook charity page:

Changes with HU

Seeing my rheumy today who may prescribe Plaquinel. What to expect?

Is arthralgia curable?

Newly diagnosed with Lupus Anticoag - can I still go diving (Have PADI diving qualification and only go to 18 metres)?

Article pinched from The National Migraine Centre/Facbook page

Is your blood thin if your INR is 2.0 or below

Sleep disturbance resulting in painful headaches

Our baby girl is here!

Brain and joint struggles

How many of us have been bouncing around between specialists to get a firm diagnosis?

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