More conditions to add to the list - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,397 members10,601 posts

More conditions to add to the list

JanBad profile image
3 Replies

Following my rheumatologist appointment yesterday, at Manchester

Royal Infirmary, the dr gave me the results of several tests done over the last 3 months.

A recent ultrasound scan shows a nodule on my thyroid, x-rays confirm osteoarthritis in both hands and a bone scan confirms early stages of osteoporosis.

It was really a lot to take in at one very short appointment. The Dr is arranging referral to a thyroid specialist and is writing to my GP to start meds for for osteoporosis.

He recommends wax treatment for my hands and has taken lots of blood to test my liver complement and vitimin D levels.

He did say it is lucky my APS and Lupus is quiet at the moment !!

Can anybody give me advice on things I can do going forward?

Written by
JanBad profile image
JanBad
To view profiles and participate in discussions please or .
3 Replies
MaryF profile image
MaryFAdministrator

Hi, I am glad this has all been picked up, and so often the Thyroid gets overlooked, an Endocrinologist will work out what to do re your Thyroid both in terms of medication and the nodules. It is really good that they are testing your Vitamin D levels and also you will probably receive some supplementation for your Osteoporosis, As you are in a cycle of blood tests get them to look at our vitamin B and Iron also if they have not done so. Also ask them about some physio and some guidance re weight bearing exercise! Let us know how it goes. MaryF

JanBad profile image
JanBad in reply to MaryF

Thank you Mary, the thyroid problem and the osteoarthritis was only picked up because I made a fuss at my last appointment and threatened to go to pals and make a formal complaint if my concerns were not taken seriously.

I had to ask my GP to arrange a bone scan, after I broke a rib cleaning the shower, the GP gave me the results and asked me to talk to the rheumy about them.

MaryF profile image
MaryFAdministrator in reply to JanBad

Unfortunately you tell an all too familiar tale, well done on seeing it through to the end! I hope you get some good results with this! MaryF

Not what you're looking for?

You may also like...

Why aren't my legs working properly?

At a TIA emergency appointment recently (thankfully I had not had a TIA) as part of the examination...

More information. More confusion.

Hello everyone, I saw a rhuematologist (in South Africa) towards the end of February. I went...

A Request From My GP For London Admin, Please, Regarding Specific Levels : Vitamins / Thyroid

Ladies, here’s looking at you. My GP in Kerrville, has asked me to ask you for the specific levels...

Finally the nerve to speak up - feel very alone with APS until now

Hi. For about 3 or 4 years I had been feeling tired. When I turned 40 (42 now) I assumed it was...

Which self testing machine?

Hi All, Went to see my rheumatologist today. He says that he wants me to stay on Warfarin as,...