Have been to GP yesterday and walk in center today, but just not sure that what I have been told is correct, in fact with the walk in I know for certain that they were wrong.
Wonder what you guys think
So, in order to explain I will need to divulge some intimate info as I feel that it is relevant
Here goes
Last Friday during sex I developed a really bad pain at the back of my head, behind my right ear
On Sunday has sex again and the pain that time was excruciating
Monday morning woke with the same pain only far milder
Had it on and off all week, and once it radiated upwards to my ear and I had a bit of earache with it
Friday saw GP who said it would either be my neck, so gave me muscle relaxants, or my ear
She looked in my ear and said that there was no sign of infection, but as my lymph nodes were swollen she would treat the ear, and prescribed a spray
That night before bed I noticed that the inside of my elbows were massively swollen
In the morning when I woke the swelling had gone down, so I thought no more of it
In the afternoon I noticed that both inside elbows were red and inflamed so decided to go to the walk in center
By the time I was bathed, dressed and on the bus they were going down and whilst waiting at the walk in the redness disappeared and the inflammation was not as visible though there was a little there (enough to feel)
I described what had happened to the Dr but she kept saying that I had had a "rash" and I told her that I had not had any rash, I had had inflammation
She said that I couldnt have as it would not have gone down so quick and it must have been a rash
She wouldnt even feel my elbows were there was still some inflammation but by then no redness
she said I had had an allergic reaction to stinging nettles
I told her that I had definitely not come into contact with any nettles, having been indoors a lot (been very sleepy all week) and only been to shop and Dr
She then said well it must be either washing powder or shampoo and gave me antihistamines
I have used the same washing powder or actually liquid and the same shampoo for years
I now have slight earache both ears, sore throat, feel generally fluey, light headed,still got the pain in my head off and on,seem to be getting like nerve pain one side of face, and inside of elbows still very tender to the touch, though only a little bit inflamed now
Sorry for such a long post, only just sort of feel that I am quite poorly(you know when you just "know"
and really dont buy the allergic reaction thing
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donnabrain
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Hi there, sorry things are rough, A GP in a walk in centre, unless they have a particular interest in rheumatology or have come across something similar in another
patient, will not have the working knowledge to give anything other than basic advice based on the normal remit of things that pass through a walk in centre. You sound to me as if you are having some sort of flare either triggered by infection or virus. It is tricky being the week-end, but on Monday, providing you do not get worse up until then, you need to be on the phone urgently to your rheumatologist as you need blood tests and some detailed note taking done. Let us know how you get on. Write all the symptoms down so you don't forget the order of what happened, and if anything swells up or goes red again, photograph it!
Also of course you need to make sure that you do not have a clot somewhere in your system! MaryF
Starting way back in 1989 I had similar pain in the back of my head, during orgasm, that then spread round to the front of my head too and was similar to migraines that I had. I had not been diagnosed with APS at that time but and I obtained some relief from the problem happening by having cranial osteopathy.
However, when I was diagnosed with APS and put on Warfarin these incidents ceased completely and I have never had another one. From talking to consultants it seems to be a problem with blood supply in us APS patients as we approach orgasm. It happens only seconds before orgasm, so there is no chance of avoiding the sense of cramping in the back of the neck and head and intense neurological, migraine like pain.
My "tell" that my INR is too thick is a pins and needles at the back of my head when sleeping. This is more likely to happen if my pillows are not arranged just do. Also, another tell is my hands go numb much faster when cycling and I must spend a lot of time shaking or raising and lowering one arm or another on long bike trips. Not convenient when I'm biking around cars as the motorists think I'm trying to tell them something.
Probably not relavant to your post, but thought I'd share as I noted your 2prominent symptom points are the same as my 2most prominent " tells."
I guess with me this tell is a question of time. I expected the numbness to hit Friday, which it did, after 45 minutes on the Hock Hocking Adena bike path. But when the numbness hits after 10 minutes that's a sign I'm too thick.
thank you for the replys which I didnt read till very late as after spending the majority of the day lying on the settee in pain I took myself off to A&E where once again the person treating me had never heard of APS.
After waiting hours they sent me home saying to make an urgent appt for my GP in the morning,so I have gone full circle!
As for phoning my reumy, if only!
He discharged me at the beginning of the year, and as I felt I had unanswered questions I emailed his secretary who I spoke to on the phone a couple of times were she said she would pass on my query
A couple of months later I saw my GP who siad she wanted to refer me back but noticed I had only just been discharged so she wrote saying could he either see me again, or if not could he phone me to discuss things
He wrote saying he would arrange for the nurse to ring me,,,this letter was dated 22nd may and so far no call,, although I have chased it three times,hence my decision to go private.
I have a book called "Headache" by Dr Neil Raskin of University of California San Francisco. Dr Raskin has been researching headache at UCSF for over 40 years and manages a headache clinic there. Full disclosure- he is also my neurologist and successfully treats me for cluster headache. His book is used as a textbook in many medical schools.
In his book Dr Raskin describes a type of headache he calls 'coital headache.' He describes it as "sudden, excruciating, throbbing headache, occurring just before or at orgasm." He calls this a 'benign' headache, and describes the pain as 'explosive.' He states that the headache may linger as long as 48 hours, and that some patients report that the headache can be avoided if the neck is kept lower than the body during sex. According to the book Dr Raskin treats this type of headache with Propranolol or Indomethacin although it doesn't help everybody. These medicines are also used for migraine and the book suggests that there might be a connection.
The book also discusses vascular and circulation problems as a possible cause. So maybe this is why APS people are experiencing this?
The book also states that patients who come to Dr Raskin with this type of headache are screened by angiogram to rule out aneurysm as a cause of the pain.
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