Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for February 2014

What has your target INR been set at?

MIne has been set at 2 - 3 as decided by a thrombotologist (not APS specialist as far as I can find out). I noticed many people have a higher target so was...

MIne has been set at 2 - 3 as decided by a thrombotologist (not APS specialist a...

Bonnie39

•10 years ago

15 Replies

Low INR

Hi everyone. Just self tested as I've got a headache and heavy cold and my INR has dropped to 1.3. Was 2.7 last week. I'm supposed to be between 3 and 4. Do...

Hi everyone. Just self tested as I've got a headache and heavy cold and my INR ...

janekins

•10 years ago

8 Replies

Medical Negligence/claiming costs back from NHS?

Hi all, I have a follow up appointment with Prof K in a fortnight to get my blood results. he has said I have APS, my rheumatologist stated in a letter that I...

Hi all, I have a follow up appointment with Prof K in a fortnight to get my bloo...

jp83

•10 years ago

3 Replies

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Has anyone written to Proff Hughes and not had a response?

Kimu

•10 years ago

1 Reply

Ryan's charity bike ride, info via Hughes Syndrome Foundation

Hi Guys information and update, and please if people spot articles from HSF or anywhere do feel free to send them to me:...

Hi Guys information and update, and please if people spot articles from HSF or a...

MaryF

Administrator•10 years ago

1 Reply

Antibodies affect to INR result

I am curious can APS antibodies make INR go higher or lower with the same dose of warfarin? Is there any information about this? Another question. Do we APS...

I am curious can APS antibodies make INR go higher or lower with the same dose o...

Leenalina

•10 years ago

13 Replies

Does anyone with Hughes also have adrenal problems?

Although my kidney scans came back as ok the letter from the hospital said that a small swelling had shown up on the left adrenal gland but as it is benign...

Although my kidney scans came back as ok the letter from the hospital said that ...

stillwaiting

•10 years ago

3 Replies

Been to see Prof Khamashta...

Hi All, I saw prof Khamashta today and explained all my history etc and he thinks i have APS. I've had bloods/urine samples taken (my purse is in shock-...

Hi All, I saw prof Khamashta today and explained all my history etc and he think...

jp83

•10 years ago

11 Replies

I am an idiot!

Got to Lupus unit at 8-45 for a 9am appt. this morning Good, I am early, I thought. Yes! one whole month early, my appt is Thursday 20th MARCH!

Got to Lupus unit at 8-45 for a 9am appt. this morning Good, I am early, I thoug...

donnabrain

•10 years ago

27 Replies

Multiple Sclerosis

Would a positive Lumber puncture and positive evoked response tests plus white areas on the brain give a definite MS diagnosis? Even though I have got APS...

Would a positive Lumber puncture and positive evoked response tests plus white a...

42Lilac

•10 years ago

14 Replies

Could I have Hughes Syndrome?

I was wondering if I could ask for your thoughts. I had an illness about a year ago where it felt as if my whole body went berserk, and I still don’t...

I was wondering if I could ask for your thoughts. I had an illness about a year ...

AnnNY

•10 years ago

17 Replies

Has this site been hacked?

This morning I received an email addressed to Tim APS via my registered email account. It contains a link to a site sualktikamera which I have not clicked on....

This morning I received an email addressed to Tim APS via my registered email ac...

tim47

•10 years ago

5 Replies

Warming sensation goes thru body for 30 sec or so I have pad & angina

callie123

•10 years ago

10 Replies

Thyroid & Autoimmune Disorders?

Hi :) Just wanted to share this information here because I thought it was interesting and may be helpful. A friend of mine who is dealing with major...

Hi :) Just wanted to share this information here because I thought it was inter...

thestellas54jc

•10 years ago

2 Replies

Confused regarding symptoms

Hi there everyone, had a diagnosis of aps in november and had my second conformation blood test yesterday my haemotologist seems to think the symptoms I have...

Hi there everyone, had a diagnosis of aps in november and had my second conforma...

bevjane74

•10 years ago

13 Replies

Pain in wrists

I have recently started getting pain in my wrists is this related to my aps ????

sarahlou1801

•10 years ago

7 Replies

Tougher than I thought

Since being diagnosed in 2003 with APS, I have lived in fear of being in a situation where I had a medical emergency in an area with few medical resources. I...

Since being diagnosed in 2003 with APS, I have lived in fear of being in a situa...

danaja

•10 years ago

6 Replies

I am new to this site, six mos post broken ankle and resulting dvt, just diagnosed with APS

Six mos. ago I was post five IVF failures and had selected an egg donor, and was ready to start my family. I never miscarried but just had no implantation. But...

Six mos. ago I was post five IVF failures and had selected an egg donor, and was...

Sandrapanda

•10 years ago

6 Replies

Does anyone know of a APS specialist in the US? The Boston area would be best.

luluspetals11

•10 years ago

10 Replies

lessening of symptoms

I was diagnosed almost 20 years ago very easily by the stories on here. I had had 5 miscarriages and the doctor who attended no 5 had just read a paper on APL...

I was diagnosed almost 20 years ago very easily by the stories on here. I had ha...

margaretjo

•10 years ago

4 Replies

Spontaneous bruising of eyelid.

Hi all, Last week I advised the community of 2 vision losses I'd suffered 3 weeks ago. On Friday my left eyelid bruised (looked like I had a black eye). I...

Hi all, Last week I advised the community of 2 vision losses I'd suffered 3 week...

KatieA

•10 years ago

5 Replies

2 new issues, that I need a wee bit of help with.......new dizzy sensations and vitamin D deficiency?

Hi folks, I am new to these drugs and would be interested to hear if any one else is or has had these problems. 1. Dizzy light headed moments, which almost...

Hi folks, I am new to these drugs and would be interested to hear if any one els...

Andrewl

•10 years ago

15 Replies

I have gone 'AWOL' landed in Poland for an epic adventure

Having defeated one infection, and gained another and wrestled with insurance companies, I am now installed with my entire family up a mountain in Poland,...

Having defeated one infection, and gained another and wrestled with insurance co...

MaryF

Administrator•10 years ago

28 Replies

Differences between LMWHeparin and Warfarin, how they work, side effects and suitability.

Hi all, I've been looking at the different anticoagulation treatment given for different cases/people, it seems the treatment is usually dependant on whether...

Hi all, I've been looking at the different anticoagulation treatment given for ...

jp83

•10 years ago

15 Replies

Hi could any one tell me what happens on your first appointment at St Thomas London .

mabble

•10 years ago

3 Replies

Do GP's deal with your prescription and treatment once you have a diagnosis?

Hi all, just having a think...funny the questions that go through your mind, and I'm jumping the gun as I havnt even seen Prof Khamashta yet...if you are...

Hi all, just having a think...funny the questions that go through your mind, and...

jp83

•10 years ago

6 Replies

multi site avascular necrosis after non Hodgkins- could Hughes be a part of this?

hi- I'm new to this site but am asking on behalf of my daughter aged 27. 10 years ago she was diagnosed with nonHodgkin's lymphoma and received chemo and high...

hi- I'm new to this site but am asking on behalf of my daughter aged 27. 10 year...

Alibi23

•10 years ago

2 Replies

Update..........

Hya all-as per my previous posts my newspaper article is soon to go to print with the national papers,then locally. I have also had a telephone interview today...

Hya all-as per my previous posts my newspaper article is soon to go to print wit...

emmaj

•10 years ago

5 Replies

APS Specialist in the States

Hi, does anyone know where I can find an APS specialist in the US? I live in PA and I'm willing to drive about 1-2 hrs. Thanks!!!!! :)

Hi, does anyone know where I can find an APS specialist in the US? I live in PA...

thestellas54jc

•10 years ago

10 Replies

Update and a big thank you!

I realized I haven't posted in a while and thought it was time for an update and a big thank you! I am in a much better place both mentally and physically than...

I realized I haven't posted in a while and thought it was time for an update and...

dotnikdavis

•10 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2014

What has your target INR been set at?

Low INR

Medical Negligence/claiming costs back from NHS?

Has anyone written to Proff Hughes and not had a response?

Ryan's charity bike ride, info via Hughes Syndrome Foundation

Antibodies affect to INR result

Does anyone with Hughes also have adrenal problems?

Been to see Prof Khamashta...

I am an idiot!

Multiple Sclerosis

Could I have Hughes Syndrome?

Has this site been hacked?

Warming sensation goes thru body for 30 sec or so I have pad & angina

Thyroid & Autoimmune Disorders?

Confused regarding symptoms

Pain in wrists

Tougher than I thought

I am new to this site, six mos post broken ankle and resulting dvt, just diagnosed with APS

Does anyone know of a APS specialist in the US? The Boston area would be best.

lessening of symptoms

Spontaneous bruising of eyelid.

2 new issues, that I need a wee bit of help with.......new dizzy sensations and vitamin D deficiency?

I have gone 'AWOL' landed in Poland for an epic adventure

Differences between LMWHeparin and Warfarin, how they work, side effects and suitability.

Hi could any one tell me what happens on your first appointment at St Thomas London .

Do GP's deal with your prescription and treatment once you have a diagnosis?

multi site avascular necrosis after non Hodgkins- could Hughes be a part of this?

Update..........

APS Specialist in the States

Update and a big thank you!

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