lessening of symptoms: I was diagnosed... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

lessening of symptoms

margaretjo profile image
4 Replies

I was diagnosed almost 20 years ago very easily by the stories on here. I had had 5 miscarriages and the doctor who attended no 5 had just read a paper on APL I know i was very lucky. I was put on aspirin for 6 months and subsequently had a succsessful pregnancy (my third) Anyway after my childbearing days were over due to a hysterectomy 16 years ago i had no problems with APL until 3 years ago when i had a spontaneous clot. when i look back on it i was feeling really tired and brain fogged for some little while previous to this. I have since had 4 more PEs 3 whilst on warfrin 1 whilst on a low dose of clexane. I am now on 80mg clexane twice a day. What i want to ask is I have noticed a lot of people saying their symptoms improve when on anti-coagulation but mine dont seemed to have improved in the slightest since the first pe is this unusual. Thanks

Written by
margaretjo profile image
margaretjo
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Silent1 profile image
Silent1

Have you tried plaquenil? It has been a godsend for me. Not near as tired.

margaretjo profile image
margaretjo in reply toSilent1

No i havent but i see my rheumy next week and am gpi

margaretjo profile image
margaretjo in reply tomargaretjo

Sorry having probs what i e

margaretjo profile image
margaretjo in reply toSilent1

Sorry about that im having problems with my mobile so im on the lap top so what i was trying to say was i see my rheumy next week and am going to ask him about it. I have heard that it takes a while to work is that right

Not what you're looking for?

You may also like...

Hughes diagnosed after 40years of symptoms

Hello everyone My story started around 40 years ago I was finally diagnosed a nearly 2 years ago...
Pappp profile image

Symptoms fluctuating

Hi, I am fairly new to all this as I was only diagnosed a couple of months ago. I have had a...

Meds

I could use some advice on medications for APS. When I was first diagnosed, I was started on baby...

Professor Graham Hughes' Blog May 017

BLOG – May 2017 Waiting for a taxi to take me back to Basel airport for the short flight home to...
MaryF profile image
Administrator

Just diagnosed APS, Already have MS, Need support and advice please

Hi, I have MS, I was dx when I was 28 - now 37. It is a definite diagnosis. I had what I thought...
anniesensi profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.