APS Specialist in the States - Hughes Syndrome A...

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APS Specialist in the States

thestellas54jc profile image
10 Replies

Hi, does anyone know where I can find an APS specialist in the US? I live in PA and I'm willing to drive about 1-2 hrs.

Thanks!!!!! :)

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thestellas54jc profile image
thestellas54jc
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10 Replies
MaryF profile image
MaryFAdministrator

Hi there and welcome, firstly there are plenty of people from the USA on here and over time, they will answer you and say who they feel is nearest to your location, and in the mean time, there are names on here worth exploring and contacting. apsaction.org/

Let us know you get on. MaryF

thestellas54jc profile image
thestellas54jc

Thanks!!! I checked and there's 3 doctors in NY which is only about 1 1/2 - 2 hrs away from me. My husband said he'd be willing to travel with me if I can get an appointment. I do live closer to Philadelphia, PA so if anyone knows of an APS specialist there, please let me know! Thanks sooo much for your help!

Lexi_Img profile image
Lexi_Img

Yes. I see Dr. Robert Kaplan Hematologist

at West Penn Hospital in Pittsburgh Pa for APS. It is located on 4815 Liberty Avenue in Bloomfield his telephone number is 412.578.4484. My INR is followed in their Anticoagulation Unit at the hospital as needed. If this is to far maybe you could call and see if they know of somewhere closer. I am very happy with the teams care.

Hope you can see them.

in reply toLexi_Img

I was just diagnosed and started going to Dr. Kaplan in Pittsburgh as well. I would love to know if you have heard of any other specialists in the area. Is there any change in your opinion of going to him?

Lexi_Img profile image
Lexi_Img in reply to

No I still see Dr. Kaplan. He is the one that has dx.me with this insidious desease. He has other doctors at the practice you may want to see. At this point the clinic part is hard since I haven't been very well. I am not taking the Asprin he prescribed. My blood got too thin. I just got out of the hospital after 8days. I had Asthma attack and the medication interfered with my warfin. They could not get a pro time for an INR. It was very scary. I am 3.5 now and still. Being checked. This did not have anything to do with my doctor. I will continue to see.

I would love to talk again. We could be support for one another in these times of needs when you feel beside ourselves. If you hear of anything in the south hills let me know. There maybe a clinic opening in Peterstownship soon.

Thanks for the chat.

in reply toLexi_Img

I would love to keep in touch. Can we message each other on here, email? Let me know!

Lexi_Img profile image
Lexi_Img in reply to

Where are you from? I am in South Park do you know where this is? I think we could exchange some thoughts for sure. I found out about my APS after I had a knee replacement last year and developed a PE. I was referred to Dr. Kaplan after by a Pulmonary Specialist at WP. I am fighting right know and so glad you found me so we both could chat. Ruth

I see Dr. Andrea Gaito...Rheumatologist, Basking Ridge New Jersey....Also The Hospital For Special Surgery/Rheumatology Dept in NYC is a leader in APS research and treatment

hss.edu/newsroom_a-catalyst...

best wishes

thestellas54jc profile image
thestellas54jc

Thanks everyone!!! I was able to get an appointment on Feb 27th at the Hospital for Special Surgery in NYC. Can't wait to finally talk to an APS specialist!

~Tina

Lexi_Img profile image
Lexi_Img

Yes, West Penn hospital, Dr Robert Kaplan, Hemotologist. He dx and understands this disease. You can open up and speak to him and he will never rush you. He does like to teach you also.

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